| scholarly article | Q13442814 |
| P2093 | author name string | Misha Angrist | |
| P2860 | cites work | Community-based participatory research from the margin to the mainstream: are researchers prepared? | Q37485820 |
| 'I'm Happy if I Can Help'. Public views on future medicines and gene-based therapy in Iceland. | Q40134067 | ||
| Taking the least of you: most of us have tissue or blood samples on file somewhere, whether we know it or not. What we don't typically know is what research they are being used for or how much money is being made from them. And science may want to k | Q40277052 | ||
| On Jim Watson's APOE status: genetic information is hard to hide | Q42354772 | ||
| Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider | Q44352767 | ||
| Genetic privacy. Whole-genome data not anonymous, challenging assumptions | Q44409487 | ||
| Celebrity genomes alarm researchers | Q48560904 | ||
| Beyond informed consent: the therapeutic misconception and trust. | Q53155886 | ||
| Ethics. Identifiability in genomic research. | Q53412520 | ||
| Genomic anonymity: have we already lost it? | Q56783555 | ||
| Confidentiality in genome research | Q80011439 | ||
| The Estonian healthcare system and the genetic database project: from limited resources to big hopes | Q80395169 | ||
| Protecting aggregate genomic data | Q81931862 | ||
| An afternoon at UK Biobank | Q83609342 | ||
| Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays | Q21092481 | ||
| Genetic variation in an individual human exome | Q21145035 | ||
| From genetic privacy to open consent | Q24550752 | ||
| Acceptability of a personally controlled health record in a community-based setting: implications for policy and design | Q30228053 | ||
| How (not) to protect genomic data privacy in a distributed network: using trail re-identification to evaluate and design anonymity protection systems | Q30938588 | ||
| Identifiability of DNA data: the need for consistent federal policy | Q33383986 | ||
| Correcting "winner's curse" in odds ratios from genomewide association findings for major complex human diseases. | Q33551303 | ||
| The uneasy ethical and legal underpinnings of large-scale genomic biobanks | Q34004552 | ||
| What does it mean to be identifiable? | Q34014612 | ||
| Genetics of the Framingham Heart Study population | Q34458072 | ||
| Generations of sequencing technologies | Q34875590 | ||
| Re-identification of familial database records. | Q35726697 | ||
| Community-based participatory research: assessing the evidence. | Q35906478 | ||
| Power of deep, all-exon resequencing for discovery of human trait genes | Q37129418 | ||
| Integrating research and action: a systematic review of community-based participatory research to address health disparities in environmental and occupational health in the USA | Q37214256 | ||
| P433 | issue | 6 | |
| P407 | language of work or name | English | Q1860 |
| P921 | main subject | informed consent | Q764527 |
| citizen science | Q1093434 | ||
| data ethics | Q45933174 | ||
| citizen science project | Q24577212 | ||
| P304 | page(s) | 691-699 | |
| P577 | publication date | 2009-11-01 | |
| P1433 | published in | Personalized Medicine | Q19946312 |
| P1476 | title | Eyes wide open: the personal genome project, citizen science and veracity in informed consent | |
| P478 | volume | 6 |
| Q57817784 | A focus on personal genomics |
| Q37226683 | A guide to the current Web-based resources in pharmacogenomics. |
| Q42368130 | Citizen science applied to building healthier community environments: advancing the field through shared construct and measurement development |
| Q24658620 | Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives |
| Q27324190 | Development and preliminary evaluation of an online educational video about whole-genome sequencing for research participants, patients, and the general public |
| Q37736460 | Direct-to-consumer genome testing: opportunities for pharmacogenomics research? |
| Q73121811 | Ethical Dimensions of Dynamic Consent in Data-Intense Biomedical Research—Paradigm Shift, or Red Herring? |
| Q24618993 | Evolving approaches to the ethical management of genomic data |
| Q31114379 | Findings made in gene panel to whole genome sequencing: data, knowledge, ethics - and consequences? |
| Q64054698 | Informed Consent in Biomedical Research |
| Q27324648 | Motivations, concerns and preferences of personal genome sequencing research participants: Baseline findings from the HealthSeq project |
| Q31126754 | On the privacy risks of sharing clinical proteomics data |
| Q33983987 | Only connect: personal genomics and the future of American medicine |
| Q36432823 | País de gordos/país de muertos: Obesity, death and nation in biomedical and forensic genetics in Mexico |
| Q26749580 | Personal Genome Sequencing in Ostensibly Healthy Individuals and the PeopleSeq Consortium |
| Q35237177 | Personal genomes in progress: from the human genome project to the personal genome project |
| Q86497601 | Personal genomes, participatory genomics and the anonymity-privacy conundrum |
| Q34289712 | Personal genomics and individual identities: motivations and moral imperatives of early users |
| Q28595953 | Privacy Attitudes among Early Adopters of Emerging Health Technologies |
| Q28660341 | Revisiting respect for persons in genomic research |
| Q30401131 | Sharing Data to Build a Medical Information Commons: From Bermuda to the Global Alliance |
| Q30957260 | The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts. |
| Q48828162 | The end of donor anonymity: how genetic testing is likely to drive anonymous gamete donation out of business |
| Q57989438 | Urge Overkill: Protecting Deidentified Human Subjects at What Price? |
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