The use of US health insurance data for surveillance of rare disorders: hereditary hemorrhagic telangiectasia.

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The use of US health insurance data for surveillance of rare disorders: hereditary hemorrhagic telangiectasia. is …
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scholarly articleQ13442814

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P356DOI10.1038/GIM.2013.66
P932PMC publication ID4453870
P698PubMed publication ID23703685
P5875ResearchGate publication ID236908717

P50authorScott D. GrosseQ47698025
Mary M HulihanQ115088548
P2093author name stringSheree L Boulet
Marie E Faughnan
Althea M Grant
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Why is genetic screening for autosomal dominant disorders underused in families? The case of hereditary hemorrhagic telangiectasiaQ35194662
A long diagnostic delay in patients with Hereditary Haemorrhagic Telangiectasia: a questionnaire-based retrospective studyQ36281641
Brain arteriovenous malformation multiplicity predicts the diagnosis of hereditary hemorrhagic telangiectasia: quantitative assessmentQ37055681
Health care utilization and expenditures for children and young adults with muscular dystrophy in a privately insured populationQ37134991
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Prevalence and nature of dyspnea in patients with hereditary hemorrhagic telangiectasia (HHT).Q38458863
Hereditary haemorrhagic telangiectasia: a population-based study of prevalence and mortality in Danish patientsQ40819926
Genotype-phenotype relationship in hereditary haemorrhagic telangiectasia.Q43146590
Sickle cell disease-related pediatric medical expenditures in the U.S.Q45130084
Cost savings through molecular diagnosis for hereditary hemorrhagic telangiectasiaQ45130977
Long-term medical costs and resource utilization in systemic lupus erythematosus and lupus nephritis: a five-year analysis of a large medicaid population.Q46012391
Genetic epidemiology of hereditary hemorrhagic telangiectasia in a local community in the northern part of JapanQ48323777
A public health framework for rare blood disorders.Q51846582
Molecular diagnosis in hereditary hemorrhagic telangiectasia: findings in a series tested simultaneously by sequencing and deletion/duplication analysis.Q54626589
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Life expectancy in patients with hereditary haemorrhagic telangiectasiaQ83089623
P433issue1
P407language of work or nameEnglishQ1860
P921main subjecthereditary hemorrhagic telangiectasiaQ776881
P304page(s)33-39
P577publication date2013-05-23
P1433published inGenetics in MedicineQ15765508
P1476titleThe use of US health insurance data for surveillance of rare disorders: hereditary hemorrhagic telangiectasia
P478volume16

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