| scholarly article | Q13442814 |
| P2093 | author name string | Michael J Bamshad | |
| Holly K Tabor | |||
| Joon-Ho Yu | |||
| Seema M Jamal | |||
| P2860 | cites work | Research ethics recommendations for whole-genome research: consensus statement | Q21145862 |
| Human genome sequencing in health and disease | Q22065433 | ||
| Exome sequencing identifies the cause of a mendelian disorder | Q24607742 | ||
| From patients to partners: participant-centric initiatives in biomedical research | Q27016065 | ||
| Making a definitive diagnosis: successful clinical application of whole exome sequencing in a child with intractable inflammatory bowel disease | Q28301461 | ||
| Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research | Q28601377 | ||
| Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network | Q28673413 | ||
| Public expectations for return of results from large-cohort genetic research | Q28754402 | ||
| Exome sequencing in sporadic autism spectrum disorders identifies severe de novo mutations | Q29614573 | ||
| Exome sequencing as a tool for Mendelian disease gene discovery | Q29615382 | ||
| Emotional distress following genetic testing for hereditary breast and ovarian cancer: a meta-analytic review | Q33594181 | ||
| Prenatal whole genome sequencing: just because we can, should we? | Q33959897 | ||
| Psychological impact of genetic testing for Huntington's disease: an update of the literature | Q34060489 | ||
| A timely arrival for genomic medicine | Q34155619 | ||
| Managing incidental findings and research results in genomic research involving biobanks and archived data sets | Q34205284 | ||
| Patient-controlled encrypted genomic data: an approach to advance clinical genomics | Q34346566 | ||
| The incidentalome: a threat to genomic medicine | Q34546699 | ||
| Disclosing individual genetic results to research participants | Q34579296 | ||
| Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group | Q34960621 | ||
| Motivators for participation in a whole-genome sequencing study: implications for translational genomics research | Q35591689 | ||
| Patient reactions to personalized medicine vignettes: an experimental design | Q35619545 | ||
| You never call, you never write: why return of 'omic' results to research participants is both a good idea and a moral imperative | Q35627358 | ||
| Professional perspectives about pharmacogenetic testing and managing ancillary findings | Q35693724 | ||
| The past, present, and future of the debate over return of research results and incidental findings | Q35749983 | ||
| Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility | Q35791516 | ||
| Public perspectives about pharmacogenetic testing and managing ancillary findings | Q35836799 | ||
| "If I could in a small way help": motivations for and beliefs about sample donation for genetic research | Q35855809 | ||
| Incidental medical information in whole-exome sequencing | Q35996752 | ||
| Noninvasive whole-genome sequencing of a human fetus. | Q36048523 | ||
| Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research | Q36145902 | ||
| On the future of genetic risk assessment | Q36164695 | ||
| Underutilization of BRCA1/2 testing to guide breast cancer treatment: black and Hispanic women particularly at risk | Q36706640 | ||
| Managing incidental findings in human subjects research: analysis and recommendations | Q36954360 | ||
| Understanding incidental findings in the context of genetics and genomics | Q36968950 | ||
| Exploring concordance and discordance for return of incidental findings from clinical sequencing | Q37148894 | ||
| The legal risks of returning results of genomics research | Q37189098 | ||
| Opportunities and challenges for the integration of massively parallel genomic sequencing into clinical practice: lessons from the ClinSeq project | Q37216033 | ||
| Sharing individual research results with biospecimen contributors: counterpoint | Q37274153 | ||
| Taxonomizing, sizing, and overcoming the incidentalome | Q37290641 | ||
| The Informed Cohort Oversight Board: From Values to Architecture | Q37412563 | ||
| The ethics of disclosing genetic diagnosis for Alzheimer's disease: do we need a new paradigm? | Q37889522 | ||
| Whole exome and whole genome sequencing | Q37924548 | ||
| To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts. | Q38022136 | ||
| A closer look revisited: are we subjects or are we donors? | Q38405116 | ||
| Sociocultural influences on participation in genetic risk assessment and testing among African American women | Q40554344 | ||
| An unwelcome side effect of direct-to-consumer personal genome testing: raiding the medical commons | Q42091906 | ||
| Exome sequencing makes medical genomics a reality | Q43206616 | ||
| Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy | Q44166679 | ||
| Psychological distress in the 5-year period after predictive testing for Huntington's disease | Q45288483 | ||
| The benefits and potential harms of genetic testing for Huntington's disease: a case study | Q45291643 | ||
| Categorizing genetic tests to identify their ethical, legal, and social implications | Q45305010 | ||
| Barriers to the use of genetic testing: a study of racial and ethnic disparities | Q46193893 | ||
| What factors may influence psychological well being at three months and one year post BRCA genetic result disclosure? | Q48720899 | ||
| The impact of predictive genetic testing for hereditary nonpolyposis colorectal cancer: three years after testing. | Q50900666 | ||
| Psychological impact of genetic testing for hereditary non-polyposis colorectal cancer. | Q50987771 | ||
| The search for clarity in communicating research results to study participants. | Q53132496 | ||
| Reporting genetic results in research studies: summary and recommendations of an NHLBI working group. | Q55041761 | ||
| Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago. | Q55244429 | ||
| The Centers for Mendelian Genomics: a new large-scale initiative to identify the genes underlying rare Mendelian conditions. | Q55709354 | ||
| Informed consent for whole genome sequencing: a qualitative analysis of participant expectations and perceptions of risks, benefits, and harms. | Q55711624 | ||
| Medicine. Whole-genome sequencing: the new standard of care? | Q56774658 | ||
| Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small | Q56777705 | ||
| Return of results: not that complicated? | Q57644037 | ||
| Secondary researchers' duties to return incidental findings and individual research results: a partial-entrustment account | Q57644040 | ||
| Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time | Q57785176 | ||
| Whole-Genome Sequencing: The New Standard of Care? | Q57839685 | ||
| The emergence of an ethical duty to disclose genetic research results: international perspectives | Q58674081 | ||
| Psychological Impact of Genetic Counseling for Familial Cancer: A Systematic Review and Meta-Analysis | Q60030330 | ||
| Racial differences in the use of BRCA1/2 testing among women with a family history of breast or ovarian cancer | Q81644523 | ||
| Incidence and predictors of positive and negative effects of BRCA1/2 genetic testing on familial relationships: a 3-year follow-up study | Q83213657 | ||
| Challenges in the clinical application of whole-genome sequencing | Q84141850 | ||
| Points to consider in the clinical application of genomic sequencing | Q84730858 | ||
| P433 | issue | 9 | |
| P407 | language of work or name | English | Q1860 |
| P921 | main subject | whole genome sequencing | Q2068526 |
| P304 | page(s) | 684-690 | |
| P577 | publication date | 2013-04-25 | |
| P1433 | published in | Genetics in Medicine | Q15765508 |
| P1476 | title | Self-guided management of exome and whole-genome sequencing results: changing the results return model | |
| P478 | volume | 15 |
| Q37674771 | "Use it or lose it" as an alternative approach to protect genetic privacy in personalized medicine |
| Q33858610 | Attitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing |
| Q55663109 | Attitudes of non-African American focus group participants toward return of results from exome and whole genome sequencing. |
| Q57280633 | Behavioral impact of return of genetic test results for complex disease: Systematic review and meta-analysis |
| Q41642170 | Can we afford to sequence every newborn baby's genome? |
| Q55557673 | Community dissemination and genetic research: moving beyond results reporting. |
| Q50510439 | DECIDE: a Decision Support Tool to Facilitate Parents' Choices Regarding Genome-Wide Sequencing. |
| Q38250263 | Defining and managing incidental findings in genetic and genomic practice |
| Q30839925 | Eliciting preferences on secondary findings: the Preferences Instrument for Genomic Secondary Results. |
| Q37687510 | Enhancing the incidental pipeline in genomic sequencing |
| Q36590467 | Ethical Considerations for the Return of Incidental Findings in Ophthalmic Genomic Research |
| Q30662971 | Genetic GIScience: Toward a Place-Based Synthesis of the Genome, Exposome, and Behavome |
| Q47149360 | Genetics in the 21st Century: Implications for patients, consumers and citizens. |
| Q38322338 | Genomic medicine and risk prediction across the disease spectrum |
| Q57643473 | Health professionals' and researchers' perspectives on prenatal whole genome and exome sequencing: 'We can't shut the door now, the genie's out, we need to refine it' |
| Q36166145 | Illustrative case studies in the return of exome and genome sequencing results |
| Q47601953 | Impact of Receiving Secondary Results from Genomic Research: A 12-Month Longitudinal Study |
| Q87996412 | Implementation of personalized medicine in Central-Eastern Europe: pitfalls and potentials based on citizen's attitude |
| Q56763711 | Informed consent for next-generation nucleotide sequencing studies: Aiding communication between participants and investigators |
| Q37219339 | Integrating precision medicine in the study and clinical treatment of a severely mentally ill person |
| Q38211768 | Interactive e-counselling for genetics pre-test decisions: where are we now? |
| Q38239811 | Managing the ethical challenges of next-generation sequencing in genomic medicine |
| Q33934216 | Models of consent to return of incidental findings in genomic research |
| Q37702883 | My46: a Web-based tool for self-guided management of genomic test results in research and clinical settings |
| Q90045430 | NMR-based newborn urine screening for optimized detection of inherited errors of metabolism |
| Q37595586 | Parental attitudes, values, and beliefs toward the return of results from exome sequencing in children |
| Q42688327 | Parents' Perspectives on Supporting Their Decision Making in Genome-Wide Sequencing. |
| Q30408185 | Pathogenic variants for Mendelian and complex traits in exomes of 6,517 European and African Americans: implications for the return of incidental results |
| Q34372410 | Policy and the inevitability of sharing: GINA and social media |
| Q45301831 | Preferences for the Return of Individual Results From Research on Pediatric Biobank Samples |
| Q36320065 | Preferences for the provision of whole genome sequencing services among young adults |
| Q53030293 | Prenatal whole exome sequencing: the views of clinicians, scientists, genetic counsellors and patient representatives. |
| Q92512605 | Rethinking the "open future" argument against predictive genetic testing of children |
| Q34000877 | Return of genomic results to research participants: the floor, the ceiling, and the choices in between |
| Q57163463 | Return of individual results in epilepsy genomic research: A view from the field |
| Q57640417 | Strategies to Guide the Return of Genomic Research Findings: An Australian Perspective |
| Q45304654 | The development of a preference-setting model for the return of individual genomic research results |
| Q36470928 | Timing and context: important considerations in the return of genetic results to research participants |
| Q34159801 | Translating personalized medicine using new genetic technologies in clinical practice: the ethical issues |
| Q47307748 | Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratories. |
| Q53774356 | Use of metaphors about exome and whole genome sequencing. |
| Q47294616 | When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing. |
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