An implementation framework for the feedback of individual research results and incidental findings in research

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An implementation framework for the feedback of individual research results and incidental findings in research is …
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scholarly articleQ13442814

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P6179Dimensions Publication ID1003871047
P356DOI10.1186/1472-6939-15-88
P8608Fatcat IDrelease_ttz4374lone4blpgt6zgvqtwfa
P932PMC publication ID4391472
P698PubMed publication ID25539799
P5875ResearchGate publication ID270002712

P50authorBartha KnoppersQ2885924
Adrian ThorogoodQ40164567
Yann JolyQ46004599
P2093author name stringAnthoula Lazaris
Ayat Salman
Peter Metrakos
Tommy Nilsson
P2860cites workReturn of individual research results and incidental findings: facing the challenges of translational scienceQ27026989
Whole-genome sequencing in health care: recommendations of the European Society of Human GeneticsQ30391601
Disclosure of individual genetic data to research participants: the debate reconsideredQ33781801
Managing incidental findings and research results in genomic research involving biobanks and archived data setsQ34205284
Principles of human subjects protections applied in an opt-out, de-identified biobankQ34788719
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working groupQ34960621
Offering individual genetic research results: context mattersQ35106928
Practical implementation issues and challenges for biobanks in the return of individual research resultsQ36073696
Managing incidental findings in human subjects research: analysis and recommendationsQ36954360
Empirical analysis of current approaches to incidental findingsQ36962832
Point-counterpoint. Patient autonomy and incidental findings in clinical genomicsQ37040336
How do researchers manage genetic results in practice? The experience of the multinational Colon Cancer Family RegistryQ37639436
Considerations and costs of disclosing study findings to research participantsQ37644176
Reporting results from whole-genome and whole-exome sequencing in clinical practice: a proposal for Canada?Q38147064
Anticipate and communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts (December 2013 report of the Presidential Commission for the Study of Bioethical Issues).Q38242504
Population studies: return of research results and incidental findings Policy StatementQ39588665
The Babel of genetic data terminology.Q45936245
Disclosure of individual research results in clinico-genomic trials: challenges, classification and criteria for decision-makingQ46086451
Return of research results: general principles and international perspectivesQ48545504
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a timeQ57785176
P433issue1
P921main subjectincidental findingQ228172
P304page(s)88
P577publication date2014-12-23
P1433published inBMC Medical EthicsQ15762173
P1476titleAn implementation framework for the feedback of individual research results and incidental findings in research
P478volume15