The National Spina Bifida Patient Registry: profile of a large cohort of participants from the first 10 clinics

scientific article

The National Spina Bifida Patient Registry: profile of a large cohort of participants from the first 10 clinics is …
instance of (P31):
scholarly articleQ13442814

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P356DOI10.1016/J.JPEDS.2014.09.039
P8608Fatcat IDrelease_ah4tyh2ojjecdcu4rad62hswqm
P932PMC publication ID4535790
P698PubMed publication ID25444012

P2093author name stringMichael S Schechter
Minn M Soe
Kathleen J Sawin
Elisabeth Ward
Judy Thibadeau
NSBPR Coordinating Committee
Tiebin Liu
William Walker
P2860cites workUpdated national birth prevalence estimates for selected birth defects in the United States, 2004-2006Q22252926
Spina bifida outcome: a 25-year prospectiveQ34254988
Testing the feasibility of a National Spina Bifida Patient RegistryQ35751109
Proportion of neural tube defects attributable to known risk factorsQ35787018
Adolescents with a chronic condition: challenges living, challenges treatingQ36805640
Transitioning adolescents and young adults with a chronic health condition to adult healthcare - an exemplar programQ37178940
Modelling fortification of corn masa flour with folic acid and the potential impact on Mexican-American women with lower acculturationQ43954833
Prevalence of spina bifida among children and adolescents in 10 regions in the United StatesQ45881086
Racial/ethnic differences in the birth prevalence of spina bifida - United States, 1995-2005.Q46171601
Trends in the postfortification prevalence of spina bifida and anencephaly in the United States.Q46594629
Patient registry analyses: seize the data, but caveat lectorQ82634210
Spina bifida subtypes and sub-phenotypes by maternal race/ethnicity in the National Birth Defects Prevention StudyQ82799829
P433issue2
P407language of work or nameEnglishQ1860
P921main subjectpatientQ181600
spina bifidaQ844717
P304page(s)444-50.e1
P577publication date2014-10-30
P1433published inThe Journal of PediatricsQ7743611
P1476titleThe National Spina Bifida Patient Registry: profile of a large cohort of participants from the first 10 clinics
P478volume166

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cites work (P2860)
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Q89913489Association between maternal periconceptional alcohol consumption and neural tube defects: Findings from the National Birth Defects Prevention Study, 1997-2011
Q54247123Bladder Management and Continence Outcomes in Adults with Spina Bifida: Results from the National Spina Bifida Patient Registry, 2009 to 2015.
Q38613496Bladder Reconstruction Rates Differ Among Centers Participating in National Spina Bifida Patient Registry
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Q37545835Design and Methodological Considerations of the Centers for Disease Control and Prevention Urologic and Renal Protocol for the Newborn and Young Child with Spina Bifida.
Q88854018Editorial Comment
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