| P2093 | author name string | Alex R Kemper | |
| | Debra Skinner | |
| | Donald B Bailey | |
| | F Daniel Armstrong | |
| | Steven F Warren | |
| P2860 | cites work | Developmental cognitive genetics: how psychology can inform genetics and vice versa | Q24646467 |
| | The medical home | Q28208288 |
| | Transplantation of umbilical-cord blood in babies with infantile Krabbe's disease | Q28251538 |
| | Research psychologists' roles in the genetic revolution | Q30410848 |
| | Fragile X-associated tremor/ataxia syndrome (FXTAS). | Q30909498 |
| | Mutational analysis using oligonucleotide microarrays | Q33755554 |
| | Lessons from the Stroke Prevention Trial in Sickle Cell Anemia (STOP) study | Q33929537 |
| | Less is more: meta-analyses of sensitivity and attachment interventions in early childhood | Q33965474 |
| | Premature ovarian failure in the fragile X syndrome | Q34306135 |
| | Cord-blood transplants from unrelated donors in patients with Hurler's syndrome | Q34318953 |
| | Children with disabilities: a longitudinal study of child development and parent well-being | Q34418524 |
| | Newborn screening technology: proceed with caution | Q34519918 |
| | Genetic testing and psychology. New roles, new responsibilities | Q34613708 |
| | Development of Infants with Disabilities and Their Families: Implications for Theory and Service Delivery | Q35165360 |
| | Developmental surveillance of infants and young children in pediatric primary care | Q35590310 |
| | Practice parameter: corticosteroid treatment of Duchenne dystrophy: report of the Quality Standards Subcommittee of the American Academy of Neurology and the Practice Committee of the Child Neurology Society. | Q36005563 |
| | Does early responsive parenting have a special importance for children's development or is consistency across early childhood necessary? | Q52135027 |
| | Relative treatment effects of two prelinguistic communication interventions on language development in toddlers with developmental delays vary by maternal characteristics. | Q52139345 |
| | Improving the social-conversational skills of developmentally delayed children: an intervention study. | Q52251954 |
| | Newborn screening: complexities in universal genetic testing. | Q53251608 |
| | Research for newborn screening: developing a national framework. | Q53276814 |
| | Screening for conditions that do not meet the Wilson and Jungner criteria: the case of Duchenne muscular dystrophy. | Q55041684 |
| | Mortality in sickle cell disease. Life expectancy and risk factors for early death. | Q55065788 |
| | Health professionals' reports of information given to parents following the prenatal diagnosis of sex chromosome anomalies and outcomes of pregnancies: a pilot study | Q57745515 |
| | Prophylaxis with oral penicillin in children with sickle cell anemia. A randomized trial | Q70290536 |
| | Cognitive functioning and brain magnetic resonance imaging in children with sickle Cell disease. Neuropsychology Committee of the Cooperative Study of Sickle Cell Disease | Q71133761 |
| | Impact of bone marrow transplantation for symptomatic sickle cell disease: an interim report. Multicenter investigation of bone marrow transplantation for sickle cell disease | Q73520892 |
| | Cerebrovascular accidents in sickle cell disease: rates and risk factors | Q73982009 |
| | Developmental surveillance and screening of infants and young children | Q74121196 |
| | Serving the family from birth to the medical home. Newborn screening: a blueprint for the future - a call for a national agenda on state newborn screening programs | Q74187288 |
| | Safety of hydroxyurea in children with sickle cell anemia: results of the HUG-KIDS study, a phase I/II trial. Pediatric Hydroxyurea Group | Q78225104 |
| | Achieving family and provider partnerships for children with special health care needs | Q79174046 |
| | Primary care physicians' attitudes regarding follow-up care for children with positive newborn screening results | Q79322966 |
| | Exploring barriers to long-term follow-up in newborn screening programs | Q80277552 |
| | The importance of being expert: the quest for cancer information on the Internet | Q80456493 |
| | Healthy Steps for Young Children: sustained results at 5.5 years | Q80980984 |
| | The high price of false positives | Q81569376 |
| | Expanded newborn screening for biochemical disorders: the effect of a false-positive result | Q83895393 |
| | Therapeutic implications of the mGluR theory of fragile X mental retardation | Q36228104 |
| | A place for genetic uncertainty: parents valuing an unknown in the meaning of disease | Q36496230 |
| | A review of the psychosocial effects of false-positive results on parents and current communication practices in newborn screening | Q36569422 |
| | National evaluation of US newborn screening system components | Q36689905 |
| | The clinical aspects of newborn screening: importance of newborn screening follow-up | Q36689908 |
| | Differential treatment intensity research: a missing link to creating optimally effective communication interventions | Q36746551 |
| | Fragile X syndrome: assessment and treatment implications | Q36846987 |
| | The role of maternal responsivity in the development of children with intellectual disabilities | Q36989734 |
| | The continuum of translation research in genomic medicine: how can we accelerate the appropriate integration of human genome discoveries into health care and disease prevention? | Q37029751 |
| | Ethical, legal, and social concerns about expanded newborn screening: fragile X syndrome as a prototype for emerging issues | Q37098235 |
| | Parenting children with borderline intellectual functioning: a unique risk population | Q37469400 |
| | Structures for clinical follow-up: newborn screening | Q38446981 |
| | NICHD research initiative in newborn screening | Q38450316 |
| | Genomics--the perfect information-seeking research problem | Q38457046 |
| | Use of the Internet by patients and their families to obtain genetics-related information | Q39576281 |
| | The cooperative study of sickle cell disease: review of study design and objectives. | Q40343580 |
| | Completeness and complexity of information available to parents from newborn-screening programs | Q40425937 |
| | Clinical events in the first decade in a cohort of infants with sickle cell disease. Cooperative Study of Sickle Cell Disease | Q40441624 |
| | Examination of the communication practices between state newborn screening programs and the medical home | Q40607242 |
| | From public health emergency to public health service: the implications of evolving criteria for newborn screening panels | Q42019032 |
| | A randomized trial of longitudinal effects of low-intensity responsivity education/prelinguistic milieu teaching. | Q43683065 |
| | The contribution of marital quality to the well-being of parents of children with developmental disabilities | Q43804705 |
| | Brief report: Predictors of parenting stress among parents of children with biochemical genetic disorders | Q45044250 |
| | Visioning family-centered care in genetics: what parents and providers have to say. | Q46458101 |
| | Primary and secondary effects of parenting and stress management interventions for parents of children with developmental disabilities: a meta-analysis | Q46775079 |
| | Producing genetic knowledge and citizenship through the Internet: mothers, pediatric genetics, and cybermedicine | Q47714347 |
| | Meta-analysis of family-centered helpgiving practices research | Q47741116 |
| | Prediction of social skills in 6-year-old children with and without developmental delays: contributions of early regulation and maternal scaffolding | Q48390327 |
| | Neuropsychologic performance in school-aged children with sickle cell disease: a report from the Cooperative Study of Sickle Cell Disease | Q48788330 |
| | An experimental analysis of a neurobehavioral motor intervention | Q48799341 |
| | Satisfaction with primary health care received by families of children with developmental disabilities | Q50303427 |
| | Early effects of responsivity education/prelinguistic milieu teaching for children with developmental delays and their parents. | Q50463983 |
| | Modeling the impact of formal and informal supports for young children with disabilities and their families. | Q50886767 |
| | Prevalence, correlates, and persistence of maternal depression. | Q50894598 |
| | Responsive parenting: establishing early foundations for social, communication, and independent problem-solving skills. | Q50933021 |
| | The role of X inactivation and cellular mosaicism in women's health and sex-specific diseases. | Q51814379 |
| | Parenting-related stressors and self-reported mental health of mothers with young children. | Q51903032 |
| | Mosaicism for a full mutation, premutation, and deletion of the CGG repeats results in 22% FMRP and elevated FMR1 mRNA levels in a high-functioning fragile X male. | Q51916286 |
| | Screening for developmental and behavioral problems. | Q51926025 |
| | Newborn screening for developmental disabilities: reframing presumptive benefit. | Q52038029 |
| | Discovering fragile X syndrome: family experiences and perceptions. | Q52109590 |
| | Pediatric psychology training and genetics: what will twenty-first-century pediatric psychologists need to know? | Q52109714 |
| | The effects of early motor intervention on children with Down syndrome or cerebral palsy: a field-based study. | Q52133048 |
| P433 | issue | 6 | |
| P407 | language of work or name | English | Q1860 |
| P304 | page(s) | 648-661 | |
| P577 | publication date | 2008-03-30 | |
| P1433 | published in | Journal of Pediatric Psychology | Q15763746 |
| P1476 | title | Supporting family adaptation to presymptomatic and "untreatable" conditions in an era of expanded newborn screening | |
| P478 | volume | 34 | |