The ethical use of existing samples for genome research

scientific article published on October 2009

The ethical use of existing samples for genome research is …
instance of (P31):
scholarly articleQ13442814
review articleQ7318358

External links are
P6179Dimensions Publication ID1023019175
P356DOI10.1097/GIM.0B013E3181B2E168
P698PubMed publication ID19745750

P50authorAmy L McGuireQ60325193
P2093author name stringOliver F Bathe
P2860cites workGenetics. No longer de-identifiedQ24550730
DNA data sharing: research participants' perspectivesQ24550764
Archival, demographic and genetic studies define a Sardinian sub-isolate as a suitable model for mapping complex traits.Q30700648
Informed consent for genetic research on blood stored for more than a decade: a population based studyQ34093847
Informed consent for genetic research on stored tissue samplesQ34290380
Genetics. Genomic research and human subject privacyQ34332691
Genetic exceptionalism and legislative pragmatismQ34633503
Building on relationships of trust in biobank researchQ35430159
Ways of coping with obesity stigma: review and conceptual analysisQ35682569
Is psychiatric research stigmatized? An experimental survey of the publicQ36271467
Measuring HIV stigma: existing knowledge and gapsQ36665814
Patients' views on identifiability of samples and informed consent for genetic researchQ36761049
Opt-out plus, the patients' choice: preferences of cancer patients concerning information and consent regimen for future research with biological samples archived in the context of treatmentQ38424053
Public attitudes to the storage of blood left over from routine general practice tests and its use in research.Q40016494
For the safety and benefit of current and future patientsQ40181858
US hospitals to ask patients for right to sell their tissueQ42768170
Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to considerQ44352767
When two tribes go to war.Q45016981
Rules for research on human genetic variation--lessons from IcelandQ47852953
Attitudes and perceptions of patients towards methods of establishing a DNA biobankQ48076854
Navigating an ethical patchwork--human gene banksQ48139225
Inbreeding and developmental stability in a small human population.Q52224134
Ethics. Identifiability in genomic research.Q53412520
Protecting genetic privacy.Q53487404
Reenergizing public health through precaution.Q53886758
Ethical framework for previously collected biobank samplesQ56785936
P433issue10
P407language of work or nameEnglishQ1860
P921main subjectresearch ethicsQ1132684
P304page(s)712-715
P577publication date2009-10-01
P1433published inGenetics in MedicineQ15765508
P1476titleThe ethical use of existing samples for genome research
P478volume11

Reverse relations

cites work (P2860)
Q36318910A qualitative study of participants' views on re-consent in a longitudinal biobank
Q30419716Advising patients about obtaining genomic profiles
Q37739034Application of second-generation sequencing to cancer genomics
Q54686144Biobanking in Cancer Research
Q45950749Communicating about family health history: heredity, culture, iatrogenesis and the public good.
Q43157937Defining diagnostic tissue in the era of personalized medicine
Q35055868Ethical aspects of human biobanks: a systematic review
Q38404777Ethical aspects of participation in the database of genotypes and phenotypes of the National Center for Biotechnology Information: the Cancer and Leukemia Group B Experience
Q41149635Frequency of Alu insertions within the ACE and PR loci in Northwestern Mexicans
Q26829694Genetic research on biospecimens poses minimal risk
Q36250992Genetics researchers' and IRB professionals' attitudes toward genetic research review: a comparative analysis
Q28742349Genomic research and wide data sharing: views of prospective participants
Q33689894Glad you asked: participants' opinions of re-consent for dbGap data submission
Q33847247Inferring genetic ancestry: opportunities, challenges, and implications
Q35551797Informed consent in genomics and genetic research
Q39032106Informed consent, biobank research, and locality: perceptions of breast cancer patients in three European countries
Q37354569Lessons from HeLa Cells: The Ethics and Policy of Biospecimens
Q48188602Meeting summary: Ethical aspects of whole exome and whole genome sequencing studies (WES/WGS) in rare diseases, Tel Aviv, Israel, January 2013.
Q36698437Participant views on consent in cancer genetics research: preparing for the precision medicine era.
Q93161384Patient Preferences for Use of Archived Biospecimens from Oncology Trials When Adequacy of Informed Consent Is Unclear
Q31157016Recontacting participants for expanded uses of existing samples and data: a case study.
Q28603945Respecting Autonomy Over Time: Policy and Empirical Evidence on Re-Consent in Longitudinal Biomedical Research
Q92642124Secondary Use of Patient Tissue in Cancer Biobanks
Q33865729Tailoring the process of informed consent in genetic and genomic research
Q28732138iDASH: integrating data for analysis, anonymization, and sharing