Experience matters: neurologists' perspectives on ALS patients' well-being

scientific article published on 24 January 2017

Experience matters: neurologists' perspectives on ALS patients' well-being is …
instance of (P31):
scholarly articleQ13442814

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P356DOI10.1007/S00415-016-8382-Y
P698PubMed publication ID28120043

P50authorAlbert C. LudolphQ67390363
P2093author name stringJohannes Dorst
Dorothée Lulé
Ingo Uttner
Helena E A Aho-Özhan
Jürgen Keller
Sarah Böhm
P2860cites workIs tracheostomy still an option in amyotrophic lateral sclerosis? Reflections of a multidisciplinary work groupQ26849415
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Exposure to death is associated with positive attitudes and higher knowledge about end-of-life care in graduating medical studentsQ34138442
Does an offer for a free on-line continuing medical education (CME) activity increase physician survey response rate? A randomized trialQ34187569
Survival and quality of life after tracheostomy for acute respiratory failure in patients with amyotrophic lateral sclerosis.Q34621831
Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionalsQ36308334
Physicians' and Nurse Practitioners' Level of Pessimism About End-of-Life Care During Training: Does It Change Over Time?Q36923805
Relational autonomy or undue pressure? Family's role in medical decision-makingQ37082828
Some difficult decisions in ALS/MND.Q37765293
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Resilience and distress among amyotrophic lateral sclerosis patients and caregiversQ39263471
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Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregiversQ47584998
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Live and let die: existential decision processes in a fatal diseaseQ48098676
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Healthcare professionals' views on the provision of gastrostomy and noninvasive ventilation to amyotrophic lateral sclerosis patients in England, Wales, and Northern Ireland.Q48329790
Depression and QOL in patients with ALS: how do self-ratings and ratings by relatives differ?Q48757186
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Amyotrophic lateral sclerosis and assisted ventilation: how patients decide.Q50687107
Accepting or declining non-invasive ventilation or gastrostomy in amyotrophic lateral sclerosis: patients' perspectives.Q50958738
Quality of life of Do-Not-Resuscitate (DNR) patients: how good are physicians in assessing DNR patients' quality of life?Q51950677
How to get serious answers to the serious question: "How have you been?": subjective quality of life (QOL) as an individual experiential emergent construct.Q52016725
Individual quality of life is not correlated with health-related quality of life or physical function in patients with amyotrophic lateral sclerosis.Q53329066
The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory function. BDNF ALS Study Group (Phase III).Q53535985
What do physicians tell patients with end-stage COPD about intubation and mechanical ventilation?Q53633586
Amyotrophic lateral sclerosisQ55877676
Decision Making About Gastrostomy and Noninvasive Ventilation in Amyotrophic Lateral SclerosisQ57494909
Tracheostomy in amyotrophic lateral sclerosis: a 10-year population-based study in ItalyQ60469040
Perceived quality of life and preferences for life-sustaining treatment in older adultsQ70112897
A prospective study of preferences and actual treatment choices in ALSQ78076440
P433issue4
P921main subjectamyotrophic lateral sclerosisQ206901
P304page(s)639-646
P577publication date2017-01-24
P1433published inJournal of NeurologyQ6295649
P1476titleExperience matters: neurologists' perspectives on ALS patients' well-being
P478volume264

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cites work (P2860)
Q33734415Amyotrophic lateral sclerosis: improving care with a multidisciplinary approach
Q92481952An observational study on quality of life and preferences to sustain life in locked-in state
Q64061203Ethical Principles in Patient-Centered Medical Care to Support Quality of Life in Amyotrophic Lateral Sclerosis
Q64923967Non-invasive ventilation in amyotrophic lateral sclerosis.

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