Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent

scientific article published on 7 May 2010

Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent is …
instance of (P31):
scholarly articleQ13442814

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P356DOI10.1038/EMBOR.2010.69
P932PMC publication ID2892328
P698PubMed publication ID20448662
P5875ResearchGate publication ID44579027

P50authorBartha KnoppersQ2885924
P2860cites workResolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarraysQ21092481
Data sharing in genomics--re-shaping scientific practiceQ24550016
From genetic privacy to open consentQ24550752
Prepublication data sharingQ26283296
Using lifetime risk estimates in personal genomic profiles: estimation of uncertaintyQ28392540
Public access to genome-wide data: five views on balancing research with privacy and protectionQ28751338
Size matters: just how big is BIG?: Quantifying realistic sample size requirements for human genome epidemiologyQ28755468
Data storage and DNA banking for biomedical research: technical, social and ethical issuesQ30882730
Genomics and policymaking: from static models to complex systems?Q37404576
Research 2.0: social networking and direct-to-consumer (DTC) genomicsQ42642327
Evaluation of genetic tests for susceptibility to common complex diseases: why, when and how?Q56780467
Personal Genome Testing: Do You Know What You Are Buying?Q57238664
Personal genomics: information can be harmfulQ82426335
'Principled' personalized medicine?Q88759229
P433issue6
P921main subjectgenomicsQ222046
informed consentQ764527
P304page(s)416-419
P577publication date2010-05-07
P1433published inEMBO ReportsQ5323356
P1476titleConsent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent
P478volume11

Reverse relations

cites work (P2860)
Q28711804'Sifting the significance from the data' - the impact of high-throughput genomic technologies on human genetics and health care
Q28596875Addressing Benefits, Risks and Consent in Next Generation Sequencing Studies
Q48627080Biobanks and the phantom public
Q57730176CCMG statement on direct-to-consumer genetic testing*
Q64102258Direct-to-Consumer Genetic Testing's Red Herring: "Genetic Ancestry" and Personalized Medicine
Q82470351Direct-to-consumer genetic testing: driving choice?
Q34313389From protection of privacy to control of data streams: a focus group study on biobanks in the information society
Q28601541Identifiability and privacy in pluripotent stem cell research
Q37742635Precision medicine driven by cancer systems biology
Q51455341Protecting posted genes: social networking and the limits of GINA.
Q30529892Publics and biobanks: Pan-European diversity and the challenge of responsible innovation
Q90168491Rethinking the ethical principles of genomic medicine services
Q28603135Samples and data accessibility in research biobanks: an explorative survey

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