The emerging need for family-centric initiatives for obtaining consent in personal genome research

scientific article published on 17 December 2014

The emerging need for family-centric initiatives for obtaining consent in personal genome research is …
instance of (P31):
scholarly articleQ13442814

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P6179Dimensions Publication ID1033201839
P356DOI10.1186/S13073-014-0118-Y
P932PMC publication ID4295276
P698PubMed publication ID25593596
P5875ResearchGate publication ID270961972

P50authorKazuto KatoQ89617150
Jane KayeQ46001602
Harriet TeareQ57053485
P2093author name stringColin Mitchell
Jusaku Minari
P2860cites workResearch ethics and the challenge of whole-genome sequencingQ24550756
From patients to partners: participant-centric initiatives in biomedical researchQ27016065
Dynamic consent: a patient interface for twenty-first century research networksQ28654606
Return of genomic results to research participants: the floor, the ceiling, and the choices in betweenQ34000877
Informed consent in genomics and genetic researchQ35551797
No small matter: qualitatively distinct challenges of pediatric genomic studiesQ35617378
Human genetic research: emerging trends in ethicsQ35998786
Family consent, communication, and advance directives for cancer disclosure: a Japanese case and discussionQ36688575
Policy uncertainty, sequencing, and cell linesQ37079488
P275copyright licenseCreative Commons Attribution 4.0 InternationalQ20007257
P6216copyright statuscopyrightedQ50423863
P433issue12
P921main subjectinformed consentQ764527
P304page(s)118
P577publication date2014-12-17
P1433published inGenome MedicineQ15816848
P1476titleThe emerging need for family-centric initiatives for obtaining consent in personal genome research
P478volume6

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cites work (P2860)
Q42599863"Not Tied Up Neatly with a Bow": Professionals' Challenging Cases in Informed Consent for Genomic Sequencing
Q26772241Between Openness and Privacy in Genomics
Q58763025Equitable Participation in Biobanks: The Risks and Benefits of a "Dynamic Consent" Approach
Q37354569Lessons from HeLa Cells: The Ethics and Policy of Biospecimens
Q36828474Participants and Study Decliners' Perspectives About the Risks of Participating in a Clinical Trial of Whole Genome Sequencing
Q38642050Social and Communicative Functions of Informed Consent Forms in East Asia and Beyond.
Q52318815Tensions in ethics and policy created by National Precision Medicine Programs.
Q36110612Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan

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