Thinking about the end of life: a common issue for patients with Huntington's disease

scientific article published on 2 September 2014

Thinking about the end of life: a common issue for patients with Huntington's disease is …
instance of (P31):
scholarly articleQ13442814

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P6179Dimensions Publication ID1041665545
P356DOI10.1007/S00415-014-7479-4
P698PubMed publication ID25178513

P50authorAad TibbenQ40608078
Raymund A. C. RoosQ67223099
P2093author name stringJohan Marinus
Dick P Engberts
Suzanne J Booij
P2860cites work“Mini-mental state”Q25938989
A novel gene containing a trinucleotide repeat that is expanded and unstable on Huntington's disease chromosomes.Q27860836
Professional autonomy: a stumbling block for good medical practice. An analysis and interpretationQ34120996
Qualitative interviews in medical researchQ36904401
Advance directives in dementia: issues of validity and effectivenessQ37576062
Perspectives of decision-making in requests for euthanasia: a qualitative research among patients, relatives and treating physicians in the NetherlandsQ39529647
Communication about euthanasia in general practice: opinions and experiences of patients and their general practitionersQ40261952
Is there a duty to die?Q41455874
Euthanasia and advance directives in Huntington's disease: qualitative analysis of interviews with patientsQ44000886
Are religion and religiosity important to end-of-life decisions and patient autonomy in the ICU? The Ethicatt studyQ45030967
Huntington disease: Clinical care and evaluationQ45290085
A plea for end-of-life discussions with patients suffering from Huntington's disease: the role of the physicianQ45291193
Multisource ascertainment of Huntington disease in Canada: prevalence and population at riskQ45295491
Promoting Excellence in End-of-Life Care: lessons learned from a cohort of nursing home residents with advanced Huntington diseaseQ45303744
Attitude toward euthanasia scale: psychometric properties and relations with religious orientation, personality, and life satisfactionQ47921559
The development of the EORTC QLQ-C15-PAL: a shortened questionnaire for cancer patients in palliative careQ48535022
Advance directives for euthanasia in dementia: how do they affect resident care in Dutch nursing homes? Experiences of physicians and relativesQ48856937
Empathy and the application of the 'unbearable suffering' criterion in Dutch euthanasia practice.Q50586445
Frequency and determinants of advance directives concerning end-of-life care in The Netherlands.Q53280352
Unified Huntington's disease rating scale: Reliability and consistencyQ57422462
End-of-life practices in the Netherlands under the Euthanasia ActQ80313388
The Dutch Termination of Life on Request and Assisted Suicide (Review Procedures) ActQ81404026
Living to the bitter end? A personalist approach to euthanasia in persons with severe dementiaQ83365110
[Advance euthanasia directives in dementia rarely carried out. Qualitative study in physicians and patients]Q84196541
P433issue11
P921main subjectHuntington's diseaseQ190564
P304page(s)2184-2191
P577publication date2014-09-02
P1433published inJournal of NeurologyQ6295649
P1476titleThinking about the end of life: a common issue for patients with Huntington's disease
P478volume261

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cites work (P2860)
Q45305489A new measure for end of life planning, preparation, and preferences in Huntington disease: HDQLIFE end of life planning
Q50110610Caregiving Youth Knowledge and Perceptions of Parental End-of-Life Wishes in Huntington's Disease
Q38706475Factors Associated With End-of-Life Planning in Huntington Disease.
Q56083219Huntington disease
Q39620084New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system).
Q38858557Suicidality in Huntington's Disease: A Qualitative Study on Coping Styles and Support Strategies
Q64070562The involvement of family in the Dutch practice of euthanasia and physician assisted suicide: a systematic mixed studies review

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