| scholarly article | Q13442814 |
| P50 | author | Evi Germeni | Q57048877 |
| Peter J. Schulz | Q44327555 | ||
| P2093 | author name string | Mario G Bianchetti | |
| Isabella Vallini | |||
| P2860 | cites work | How families manage chronic conditions: an analysis of the concept of normalization | Q70013751 |
| The common-sense model of self-regulation of health and illness: how can we use it to understand and respond to our patients' needs? | Q80194561 | ||
| Celiac disease: prevalence, diagnosis, pathogenesis and treatment | Q22305490 | ||
| Identifying the unmet health needs of patients with congenital hypogonadotropic hypogonadism using a web-based needs assessment: implications for online interventions and peer-to-peer support | Q27498992 | ||
| Coeliac disease | Q28242747 | ||
| Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups | Q29618084 | ||
| Using thematic analysis in psychology | Q30476519 | ||
| Clarifying the concept of normalization | Q33755268 | ||
| Bartter syndrome: an overview | Q33902029 | ||
| Rare childhood diseases: how should we respond? | Q34804961 | ||
| Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support | Q36690457 | ||
| The process of parenting a child with a disability: normalization through accommodations | Q38518264 | ||
| Living with chronic illness in the family setting | Q38520249 | ||
| Working to establish 'normality' post-transplant: a qualitative study of kidney transplant patients | Q39343674 | ||
| Living with Gitelman disease: an insight into patients' daily experiences | Q43412770 | ||
| Living with coeliac disease: a grounded theory study | Q44900495 | ||
| Understanding normality: a qualitative analysis of breast cancer patients concepts of normality after mastectomy and reconstructive surgery | Q46184992 | ||
| Sudden illness and biographical flow in narratives of stroke recovery | Q46498443 | ||
| The Common-Sense Model of Self-Regulation (CSM): a dynamic framework for understanding illness self-management | Q47677669 | ||
| Shifting normalities: interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis | Q48448845 | ||
| Factors associated with the adaptation of parents with a chronically ill child | Q48709805 | ||
| Distress in partners of individuals diagnosed with or at high risk of developing tumors due to rare hereditary cancer syndromes | Q48895448 | ||
| Stress and well-being among parents of children with rare diseases: a prospective intervention study. | Q50947591 | ||
| Parents' perceptions of caring for an infant or toddler with diabetes. | Q51122159 | ||
| Parents' perceptions of diabetes in adolescent daughters and its impact on the family. | Q52221426 | ||
| Chronic illness as biographical disruption. | Q52413487 | ||
| P275 | copyright license | Creative Commons Attribution 4.0 International | Q20007257 |
| P6216 | copyright status | copyrighted | Q50423863 |
| P433 | issue | 4 | |
| P304 | page(s) | 489-495 | |
| P577 | publication date | 2018-01-16 | |
| P1433 | published in | European Journal of Pediatrics | Q15755736 |
| P1476 | title | Reconstructing normality following the diagnosis of a childhood chronic disease: does "rare" make a difference? | |
| P478 | volume | 177 |
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