Registered access: authorizing data access

scientific article published on 2 August 2018

Registered access: authorizing data access is …
instance of (P31):
scholarly articleQ13442814

External links are
P356DOI10.1038/S41431-018-0219-Y
P932PMC publication ID6244209
P698PubMed publication ID30069064

P50authorBartha KnoppersQ2885924
Paul FlicekQ28359506
Niklas BlombergQ28364387
Tiffany BoughtwoodQ106728244
Giselle KerryQ56395226
Dylan SpaldingQ56480108
Tommi NyrönenQ56702962
Mikael LindenQ56919943
Xiaoqian JiangQ56935775
Stephen T SherryQ59700125
Kym M BoycottQ61638582
Anthony J BrookesQ87461704
Kazuto KatoQ89617150
Dixie BakerQ90699670
Maximilian HaeusslerQ91308875
Helen FirthQ92271212
Michael BaudisQ30505717
Gunnar RätschQ41047394
Heidi L. RehmQ41543979
Ilkka LappalainenQ42793832
Serena ScollenQ47503111
P2093author name stringBrian Walsh
Steven E Brenner
Stephan Beck
Samir Das
Shuang Wang
Michael Brudno
Moran N Cabili
Andreas Matern
Anthony A Philippakis
Jordi Rambla De Argila
Marc Fiume
Matthew Hurles
Stephanie O M Dyke
Bradley A Malin
Alan C Evans
Laura L Rodriguez
Julia Foreman
David Lloyd
Knox Carey
Juha Törnroos
Mahsa Shabani
Ilia Tulchinsky
Tim Cutts
Daniel Perrett
Ravi Pandya
Miro Cupak
P2860cites workResolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarraysQ21092481
The NCBI dbGaP database of genotypes and phenotypesQ24569609
Prepublication data sharingQ26283296
Gene discovery for Mendelian conditions via social networking: de novo variants in KDM1A cause developmental delay and distinctive facial featuresQ28270890
First, design for data sharingQ28516552
Sharing health-related data: a privacy test?Q28586853
Evolving data access policy: The Canadian contextQ28586866
Making sense of big data in health research: Towards an EU action planQ28597362
Consent Codes: Upholding Standard Data Use ConditionsQ28602211
Framework for responsible sharing of genomic and health-related dataQ28603879
Facilitating collaboration in rare genetic disorders through effective matchmaking in DECIPHERQ28604234
The Matchmaker Exchange: a platform for rare disease gene discoveryQ28610742
A mechanism for controlled access to GWAS data: experience of the GAIN Data Access CommitteeQ28709335
Simplifying research access to genomics and health data with Library Cards.Q52656335
Role-based access control modelsQ56095380
Funders must encourage scientists to shareQ59075393
Assessing and managing risk when sharing aggregate genetic variant dataQ28730043
Registered access: a 'Triple-A' approachQ30489911
GENOMICS. A federated ecosystem for sharing genomic, clinical dataQ31107067
The European Genome-phenome Archive of human data consented for biomedical research.Q33663109
PhenomeCentral: a portal for phenotypic and genotypic matchmaking of patients with rare genetic diseasesQ33787699
Bedside Back to Bench: Building Bridges between Basic and Clinical Genomic ResearchQ33906483
The dbGaP data browser: a new tool for browsing dbGaP controlled-access genomic dataQ36207285
GeneMatcher: a matching tool for connecting investigators with an interest in the same geneQ40250282
Stop this waste of people, animals and moneyQ42688705
Be prepared for the big genome leakQ44711599
Reports from CAGI: The Critical Assessment of Genome Interpretation.Q45207038
P275copyright licenseCreative Commons Attribution 4.0 InternationalQ20007257
P6216copyright statuscopyrightedQ50423863
P433issue12
P407language of work or nameEnglishQ1860
P921main subjectdata accessQ5227230
data sharingQ5227350
P304page(s)1721-1731
P577publication date2018-08-02
P1433published inEuropean Journal of Human GeneticsQ2155433
P1476titleRegistered access: authorizing data access
P478volume26

Reverse relations

cites work (P2860)
Q92734613Cloud bursting galaxy: federated identity and access management
Q60938777National Neuroinformatics Framework for Canadian Consortium on Neurodegeneration in Aging (CCNA)
Q92765822Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study
Q104795288Toward better governance of human genomic data