| P2093 | author name string | Imelda Coyne | |
| | Susan Biggar | |
| | Greg Sheaf | |
| | Helen Malone | |
| | Sheila Javadpour | |
| | Zai Edworthy | |
| P2860 | cites work | Longevity of Patients With Cystic Fibrosis in 2000 to 2010 and Beyond: Survival Analysis of the Cystic Fibrosis Foundation Patient Registry | Q22305306 |
| | Interventions for improving the adoption of shared decision making by healthcare professionals | Q24193592 |
| | Decision aids for people facing health treatment or screening decisions | Q24200969 |
| | Interventions for promoting participation in shared decision-making for children with cancer | Q24202161 |
| | Grading quality of evidence and strength of recommendations | Q24562409 |
| | Guidelines for diagnosis of cystic fibrosis in newborns through older adults: Cystic Fibrosis Foundation consensus report | Q24657948 |
| | Computerized clinical decision support for medication prescribing and utilization in pediatrics | Q26828487 |
| | Shared decision making: a model for clinical practice | Q27009015 |
| | Interventions to support children's engagement in health-related decisions: a systematic review | Q27025346 |
| | Balancing the presentation of information and options in patient decision aids: an updated review. | Q27690705 |
| | Measuring inconsistency in meta-analyses | Q27860655 |
| | The hospital anxiety and depression scale | Q27860968 |
| | The estimation of intraclass correlation in the analysis of family data | Q28282237 |
| | Recommendations for examining and interpreting funnel plot asymmetry in meta-analyses of randomised controlled trials | Q29620299 |
| | Imputing missing standard deviations in meta-analyses can provide accurate results | Q29620610 |
| | Patient-centered care and adherence: definitions and applications to improve outcomes | Q33397084 |
| | Determination of the minimal clinically important difference scores for the Cystic Fibrosis Questionnaire-Revised respiratory symptom scale in two populations of patients with cystic fibrosis and chronic Pseudomonas aeruginosa airway infection | Q33650377 |
| | Real life clinic visits do not match the ideals of shared decision making | Q33931784 |
| | Deciding together? Best interests and shared decision-making in paediatric intensive care | Q34012493 |
| | Are you SURE?: Assessing patient decisional conflict with a 4-item screening test. | Q34062656 |
| | Development of a disease specific health related quality of life measure for adults and adolescents with cystic fibrosis | Q34069573 |
| | Validation of a decisional conflict scale | Q34321486 |
| | Using a 'talk' model of shared decision making to propose an observation-based measure: Observer OPTION 5 Item | Q34370513 |
| | An integrative model of shared decision making in medical encounters | Q34437991 |
| | A brief measure for assessing generalized anxiety disorder: the GAD-7. | Q34529333 |
| | Toward the 'tipping point': decision aids and informed patient choice | Q34626219 |
| | Rochester Participatory Decision-Making Scale (RPAD): reliability and validity. | Q34629460 |
| | "Appropriate" diagnostic testing: supporting diagnostics with evidence-based medicine and shared decision making | Q34994352 |
| | Implementation of a cystic fibrosis lung transplant referral patient decision aid in routine clinical practice: an observational study. | Q35066455 |
| | A metagenomic approach to characterize temperate bacteriophage populations from Cystic Fibrosis and non-Cystic Fibrosis bronchiectasis patients | Q35094605 |
| | Shared decision making: developing the OPTION scale for measuring patient involvement | Q35101207 |
| | Bone mineral density in Australian children, adolescents and adults with cystic fibrosis: a controlled cross sectional study. | Q35536515 |
| | Shared decision making in designing new healthcare environments-time to begin improving quality | Q35608538 |
| | Shared Decision Making in Pediatrics: A Systematic Review and Meta-analysis | Q35633945 |
| | Exploring complementary and alternative medicine in pediatrics: parents and professionals working together for new understanding. | Q53873209 |
| | Cystic fibrosis mortality and survival in the UK: 1947-2003 | Q56638119 |
| | The importance of including both a child perspective and the child’s perspective within health care settings to provide truly child-centred care | Q61907645 |
| | Knowledge of cystic fibrosis in patients and their parents | Q70007475 |
| | Resolution No. 43/112. Question of a convention on the rights of the child, 8 December 1988 | Q77116898 |
| | Clinic consultations with children and parents on the dietary management of cystic fibrosis | Q79300455 |
| | Controlled evaluation of the STARBRIGHT CD-ROM program for children and adolescents with Cystic Fibrosis | Q80098350 |
| | The prevalence of cystic fibrosis in the European Union | Q81171286 |
| | Clinical communication training in continuing medical education: possible, do-able and done? | Q84421247 |
| | Development, validation, and implementation of a questionnaire assessing disease knowledge and understanding in adult cystic fibrosis patients | Q84740059 |
| | Shared decision making models to inform an interprofessional perspective on decision making: a theory analysis | Q84961684 |
| | Improving transition from paediatric to adult cystic fibrosis care: programme implementation and evaluation. | Q35665859 |
| | 'It takes three to tango': a framework for understanding patient partnership in paediatric clinics | Q35798611 |
| | Achieving involvement: process outcomes from a cluster randomized trial of shared decision making skill development and use of risk communication aids in general practice | Q35834010 |
| | Exploring self-rated health among adolescents: a think-aloud study | Q35924683 |
| | Chloride conductance and genetic background modulate the cystic fibrosis phenotype of Delta F508 homozygous twins and siblings | Q36042699 |
| | Standards of care for patients with cystic fibrosis: a European consensus | Q36064117 |
| | The promise of shared decision‐making in paediatrics | Q36108259 |
| | Children as partners with adults in their medical care | Q36121179 |
| | Knowledge of adult patients with cystic fibrosis about their illness | Q36505332 |
| | Child's objection to non-beneficial research: capacity and distress based models. | Q36723894 |
| | Genetic screening for cystic fibrosis: an overview of the science and the economics | Q36763385 |
| | Implementing shared decision-making: consider all the consequences | Q37160281 |
| | Children's participation in consultations and decision-making at health service level: a review of the literature | Q37244881 |
| | Making decisions about chronic disease treatment: a comparison of parents and their adolescent children | Q37321275 |
| | Cystic fibrosis: what to expect now in the early adult years | Q38052262 |
| | Patient-centered care and outcomes: a systematic review of the literature | Q38061408 |
| | Effective follow-up consultations: the importance of patient-centered communication and shared decision making | Q38083995 |
| | Annual Review Clinic improves care in children with cystic fibrosis. | Q38148917 |
| | The interdependent roles of patients, families and professionals in cystic fibrosis: a system for the coproduction of healthcare and its improvement | Q38194427 |
| | European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre | Q38214214 |
| | Advances in the diagnosis and treatment of cystic fibrosis. | Q38231006 |
| | Shared decision making in the ED: ethical considerations | Q38853589 |
| | "I'm the one taking it": adolescent participation in chronic disease treatment decisions | Q39439076 |
| | A randomized trial of a telephone care-management strategy | Q39835102 |
| | Children's experiences of hospitalization | Q40270486 |
| | The cystic fibrosis and is product CFTR | Q40485506 |
| | Association of sweat chloride concentration at time of diagnosis and CFTR genotype with mortality and cystic fibrosis phenotype | Q41466944 |
| | Children's participation in shared decision-making: children, adolescents, parents and healthcare professionals' perspectives and experiences | Q42648466 |
| | Structured shared decision-making using dialogue and visualization: a randomized controlled trial. | Q42674530 |
| | Content coding for contextualization of care: evaluating physician performance at patient-centered decision making | Q44712579 |
| | Psychometric evaluation of the Cystic Fibrosis Questionnaire-Revised in a national sample | Q44721568 |
| | Pilot evaluation of web enabled symptom monitoring in cystic fibrosis. | Q45148715 |
| | Decision-making about pregnancy for women with cystic fibrosis | Q46189759 |
| | Clinical changes of patients with cystic fibrosis during transition from pediatric to adult care | Q46203057 |
| | Children's participation in the decision-making process during hospitalization: an observational study | Q48614050 |
| | Analyzing the effects of shared decision-making, empathy and team interaction on patient satisfaction and treatment acceptance in medical rehabilitation using a structural equation modeling approach | Q50109624 |
| | Parental Experience of Information and Education Processes Following Diagnosis of Their Infant With Cystic Fibrosis Via Newborn Screening | Q50248673 |
| | Annual review hospital visits for patients with cystic fibrosis. | Q50684507 |
| | Development and validation of The Cystic Fibrosis Questionnaire in the United States: a health-related quality-of-life measure for cystic fibrosis. | Q50954733 |
| | Validation of a decision regret scale. | Q51019738 |
| | Disease specific knowledge about cystic fibrosis, patient education and counselling in Poland. | Q51132173 |
| | Rethink "affirmative agreement," but abandon "assent". | Q51943847 |
| P433 | issue | 3 | |
| P921 | main subject | cystic fibrosis | Q178194 |
| P577 | publication date | 2017-03-06 | |
| P1433 | published in | Cochrane Database of Systematic Reviews | Q15750361 |
| P1476 | title | Interventions for promoting participation in shared decision‐making for children and adolescents with cystic fibrosis | |
| P478 | volume | 2017 | |