The Importance of Engaging Children in Research Decision-Making: A Preliminary Mixed-Methods Study

scientific article published on 01 May 2020

The Importance of Engaging Children in Research Decision-Making: A Preliminary Mixed-Methods Study is …
instance of (P31):
scholarly articleQ13442814

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P356DOI10.1002/EAHR.500049
P698PubMed publication ID32421946

P50authorSteven JoffeQ44378576
P2093author name stringNicole Stenquist
Elizabeth Bair
Hannah Palac
Avani Shukla
Erin Talati Paquette
Blake Schultz
P2860cites workThe Multidimensional Illness Severity Questionnaire: Preliminary evaluation of a brief parent-reported measure of illness severityQ91364494
Assent in research: the voices of adolescentsQ30405510
The measurement of performance in childhood cancer patientsQ34050319
Parent-Child Engagement in Decision Making and the Development of Adolescent Affective Decision Capacity and Binge DrinkingQ35133053
Involving children with cancer in decision-making about research participationQ36669850
Parental hopeful patterns of thinking, emotions, and pediatric palliative care decision making: a prospective cohort studyQ37377027
Children's consent and paediatric research: is it appropriate for healthy children to be the decision-makers in clinical research?Q39108514
Pediatric oncology professionals' perceptions of information needs of adolescent patients with cancerQ44905661
Development and validation of the parent experience of child illnessQ48884018
Children's understanding of their research rights before and after debriefing: informed assent, confidentiality, and stopping participation.Q53359279
Measuring patients' desire for autonomy: decision making and information-seeking preferences among medical patients.Q57282247
Child and Parent Understanding of Clinical Trials: The Semi-Structured Comprehension InterviewQ58106717
P433issue3
P921main subjectdecision makingQ1331926
P304page(s)12-20
P577publication date2020-05-01
P1433published inEthics & Human ResearchQ59556638
P1476titleThe Importance of Engaging Children in Research Decision-Making: A Preliminary Mixed-Methods Study
P478volume42