Informed consent, big data, and the oxymoron of research that is not research

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Informed consent, big data, and the oxymoron of research that is not research is …
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scholarly articleQ13442814

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P356DOI10.1080/15265161.2013.768864
P698PubMed publication ID23514395

P50authorJohn IoannidisQ6251482
P2860cites workPotential etiologic and functional implications of genome-wide association loci for human diseases and traitsQ22066284
Developing a simplified consent form for biobankingQ33719347
The importance of potential studies that have not existed and registration of observational data setsQ34370321
Challenges in creating an opt-in biobank with a registrar-based consent process and a commercial EHR.Q36364595
Written informed consent and selection bias in observational studies using medical records: systematic reviewQ37403302
Risk factors and interventions with statistically significant tiny effectsQ44196482
Does consent bias research?Q45627963
Differentiating and evaluating common good and public good: making implicit assumptions explicit in the contexts of consent and duty to participate.Q45950925
Consent and research governance in biobanks: evidence from focus groups with medical researchersQ48425377
Privacy, consent, and the electronic mental health record: The Person vs. the System.Q50772008
Electronic consent channels: preserving patient privacy without handcuffing researchersQ57190375
P433issue4
P921main subjectinformed consentQ764527
big dataQ858810
data ethicsQ45933174
P1104number of pages3
P304page(s)40-42
P577publication date2013-01-01
P1433published inAmerican Journal of BioethicsQ4744234
P1476titleInformed consent, big data, and the oxymoron of research that is not research
P478volume13

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cites work (P2860)
Q88488256All our data will be health data one day: the need for universal data protection and comprehensive consent
Q44430670An unbiased response to the open peer commentaries on "does consent bias research?".
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Q73121811Ethical Dimensions of Dynamic Consent in Data-Intense Biomedical Research—Paradigm Shift, or Red Herring?
Q36315748Ethics and Epistemology in Big Data Research
Q35211265How electronic clinical data can improve health technology assessment
Q64054698Informed Consent in Biomedical Research
Q24289150Lost in Translation (LiT): IUPHAR Review 6
Q36698437Participant views on consent in cancer genetics research: preparing for the precision medicine era.
Q92264420Participatory Disease Surveillance Systems: Ethical Framework
Q58206373Personal Data Management with the Databox
Q31046490Routinely collected data and comparative effectiveness evidence: promises and limitations
Q28608552Sweat, Skepticism, and Uncharted Territory: A Qualitative Study of Opinions on Data Sharing Among Public Health Researchers and Research Participants in Mumbai, India
Q30957260The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts.
Q89876282What is your definition of Big Data? Researchers' understanding of the phenomenon of the decade
Q56034273Where are human subjects in Big Data research? The emerging ethics divide

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