| scholarly article | Q13442814 |
| P50 | author | Klaus P Machold | Q37381802 |
| Gunvor Gard | Q40174955 | ||
| P2093 | author name string | Josef S Smolen | |
| Oliver Distler | |||
| Roger Hesselstrand | |||
| Ana Maria Gherghe | |||
| Carina Mihai | |||
| Alexa Binder | |||
| Tanja A Stamm | |||
| Gunnel Sandqvist | |||
| Carina Boström | |||
| Georg Stummvoll | |||
| Bettina Bauernfeind | |||
| Malin Mattsson | |||
| Juliane Stöcker | |||
| Malina Voicu | |||
| Oana Draghicescu | |||
| P2860 | cites work | South Australian Scleroderma Register: analysis of deceased patients | Q45252970 |
| Patient perspective of hand osteoarthritis in relation to concepts covered by instruments measuring functioning: a qualitative European multicentre study | Q45382348 | ||
| Skin thickness score as a predictor and correlate of outcome in systemic sclerosis: high-dose versus low-dose penicillamine trial | Q46623011 | ||
| Daily occupations and well-being in women with limited cutaneous systemic sclerosis | Q47739067 | ||
| Rheumatology outcomes: the patient's perspective | Q47997585 | ||
| Welfare state regimes, unemployment and health: a comparative study of the relationship between unemployment and self-reported health in 23 European countries. | Q50119523 | ||
| Reliability and validity of the Arthritis Hand Function Test in adults with systemic sclerosis (scleroderma). | Q52957186 | ||
| ICF linking rules: an update based on lessons learned. | Q53270373 | ||
| Development and validation of a self-administered systemic sclerosis questionnaire (SySQ). | Q53546654 | ||
| Concepts important to persons with systemic lupus erythematosus and their coverage by standard measures of disease activity and health status | Q63250459 | ||
| Concepts important to patients with psoriatic arthritis are not adequately covered by standard measures of functioning | Q63250467 | ||
| Scleroderma (systemic sclerosis): classification, subsets and pathogenesis | Q68330753 | ||
| The use of the Health Assessment Questionnaire (HAQ) to determine physical disability in systemic sclerosis | Q73463792 | ||
| Development of ICF Core Sets for patients with chronic conditions | Q80570414 | ||
| Focus group interviews in health-care research | Q33595246 | ||
| A guide to the use of focus groups in health care research: Part 1. | Q34538333 | ||
| Patients and clinicians have different perspectives on outcomes in arthritis | Q35097531 | ||
| Life with a rare chronic disease: the scleroderma experience | Q35145411 | ||
| Become your own advocate: advice from women living with scleroderma | Q37401954 | ||
| Health-related quality of life in systemic sclerosis: a systematic review | Q37567582 | ||
| Preliminary criteria for the classification of systemic sclerosis (scleroderma). Subcommittee for scleroderma criteria of the American Rheumatism Association Diagnostic and Therapeutic Criteria Committee | Q39513167 | ||
| A five-year followup of hand function and activities of daily living in systemic sclerosis (scleroderma). | Q39700228 | ||
| Disease and symptom burden in systemic sclerosis: a patient perspective. | Q40197495 | ||
| Immunopathogenesis of systemic sclerosis | Q41220119 | ||
| Systemic sclerosis (scleroderma): an integrated challenge in rehabilitation | Q41536190 | ||
| Skin score. A semiquantitative measure of cutaneous involvement that improves prediction of prognosis in systemic sclerosis | Q43537993 | ||
| Systemic sclerosis mortality in the United States: 1999-2002 implications for patient care | Q44608495 | ||
| P433 | issue | 6 | |
| P407 | language of work or name | English | Q1860 |
| P304 | page(s) | 1074-1079 | |
| P577 | publication date | 2011-06-01 | |
| P1433 | published in | Annals of the Rheumatic Diseases | Q4767876 |
| P1476 | title | Concepts of functioning and health important to people with systemic sclerosis: a qualitative study in four European countries | |
| P478 | volume | 70 |
| Q47349444 | "It's Not Me, It's Not Really Me." Insights From Patients on Living With Systemic Sclerosis: An Interview Study |
| Q48115705 | A systematic review of the epidemiology, disease characteristics and management of systemic sclerosis in Australian adults |
| Q53744989 | Aerobic and resistance exercise in systemic sclerosis: State of the art. |
| Q64074882 | An intergenerational program based on psycho-motor activity promotes well-being and interaction between preschool children and older adults: results of a process and outcome evaluation study in Austria |
| Q40283401 | Barriers and Facilitators for Participation in People with Parkinson's Disease. |
| Q53600592 | Could nailfold videocapillaroscopy usher in a new era of preventative disease-modifying therapeutic intervention in systemic sclerosis? |
| Q38400143 | Effectiveness of Nonpharmacologic Interventions in Systemic Sclerosis: A Systematic Review. |
| Q35967757 | Exploring Sources of Emotional Distress among People Living with Scleroderma: A Focus Group Study |
| Q57809218 | I do not want to suppress the natural process of inflammation: new insights on factors associated with non-adherence in rheumatoid arthritis |
| Q34244783 | Impaired quality of life in patients with systemic sclerosis compared to the general population and chronic dermatoses |
| Q36275817 | It's more than dryness and fatigue: The patient perspective on health-related quality of life in Primary Sjögren's Syndrome - A qualitative study |
| Q50901664 | Need for online information and support of patients with systemic sclerosis. |
| Q36385328 | Patients' views and needs about systemic sclerosis and its management: a qualitative interview study |
| Q52604037 | Qualitative Methods to Advance Care, Diagnosis, and Therapy in Rheumatic Diseases. |
| Q94955176 | Rapid response in the COVID-19 pandemic: a Delphi study from the European Pediatric Dialysis Working Group |
| Q48771999 | Rehabilitation needs approached by health professionals at a rheumatism hospital |
| Q98226446 | Room for improvement in non-pharmacological systemic sclerosis care? - a cross-sectional online survey of 650 patients |
| Q46481817 | Similar problem in the activities of daily living but different experience: a qualitative analysis in six rheumatic conditions and eight European countries |
| Q36758822 | The American College of Rheumatology Provisional Composite Response Index for Clinical Trials in Early Diffuse Cutaneous Systemic Sclerosis |
| Q40002833 | The American College of Rheumatology Provisional Composite Response Index for Clinical Trials in Early Diffuse Cutaneous Systemic Sclerosis |
| Q36492239 | The educational needs of people with systemic sclerosis: a cross-sectional study using the Dutch version of the Educational Needs Assessment Tool (D-ENAT). |
| Q52655851 | The patient experience of Raynaud's phenomenon in systemic sclerosis. |
| Q38225481 | The use of the International Classification of Functioning, Disability and Health to understand the health and functioning experiences of people with chronic conditions from the person perspective: a systematic review |
| Q92737230 | What moves the rheumatologist? Unravelling decision making in the referral of systemic sclerosis patients to health professionals: a qualitative study |
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