Become your own advocate: advice from women living with scleroderma

scientific article published on October 2007

Become your own advocate: advice from women living with scleroderma is …
instance of (P31):
scholarly articleQ13442814

External links are
P356DOI10.1080/09638280601029480
P932PMC publication ID2768647
P698PubMed publication ID17852224
P5875ResearchGate publication ID5988822

P2093author name stringJanet L Poole
Cindy Mendelson
P2860cites workSpecific psychosocial and behavioral outcomes from the systemic lupus erythematosus self-help courseQ70588816
Qualitative analysis: what it is and how to beginQ71929632
Body image dissatisfaction among women with scleroderma: extent and relationship to psychosocial functionQ73233482
The use of the Health Assessment Questionnaire (HAQ) to determine physical disability in systemic sclerosisQ73463792
Patient education in arthritis: randomized controlled trial of a mail-delivered programQ73521074
Scleroderma lung: pathogenesis, evaluation, and current therapyQ73794640
Development and evaluation of a patient education program for persons with systemic sclerosis (scleroderma)Q79319499
Factors related to oral hygiene in persons with sclerodermaQ82443192
A reexamination of the effectiveness of self-care education for persons with arthritisQ30460208
Focus group interviews as a data collecting strategyQ30959366
Collecting and analysing qualitative data: issues raised by the focus groupQ32028168
The concept of theme as used in qualitative nursing researchQ33914966
Chronic disease self-management program: 2-year health status and health care utilization outcomesQ34095629
Arthritis self-management studies: a twelve-year reviewQ34361230
Evidence suggesting that health education for self-management in patients with chronic arthritis has sustained health benefits while reducing health care costsQ34362182
Life with a rare chronic disease: the scleroderma experienceQ35145411
Psychologic factors in sclerodermaQ35169080
Grasp pattern variations seen in the scleroderma handQ39398259
Correlates of the disability index of the health assessment questionnaire: a measure of functional impairment in systemic sclerosisQ41701251
Daily activities and hand function in women with scleroderma.Q51670934
Psychological adjustment to systemic sclerosis.Q52202743
Some notions about assumptions underlying health education.Q52948625
Long-term randomized controlled trials of tailored-print and small-group arthritis self-management interventions.Q53347754
Health-related quality of life in systemic sclerosis as measured by the short form 36: Relationship with clinical and biologic markersQ61458385
P433issue19
P407language of work or nameEnglishQ1860
P304page(s)1492-1501
P577publication date2007-10-01
P1433published inDisability and RehabilitationQ5281184
P1476titleBecome your own advocate: advice from women living with scleroderma
P478volume29

Reverse relations

cites work (P2860)
Q48030991"It is about taking grips and not let myself be ravaged by my body": a qualitative study of outcomes from in-patient multidisciplinary rehabilitation for patients with chronic rheumatic diseases
Q47349444"It's Not Me, It's Not Really Me." Insights From Patients on Living With Systemic Sclerosis: An Interview Study
Q37385700Comparative analysis of educational needs of patients with rheumatic diseases selected based on the Polish version of the Educational Needs Assessment Tool (Pol-ENAT).
Q34905661Concepts of functioning and health important to people with systemic sclerosis: a qualitative study in four European countries.
Q48477287Evaluation of a mail-delivered, print-format, self-management program for persons with systemic sclerosis
Q93090532Factors associated with quality of life in systemic sclerosis: a cross-sectional study
Q34674313Factors related to self‐efficacy in persons with scleroderma
Q90038046Functioning in the emotional sphere and ways of coping with chronic connective tissue disease
Q39686272Living with scleroderma: patients' perspectives, a phenomenological study
Q37586400New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN).
Q88612537Randomized Controlled Trial to Evaluate an Internet-Based Self-Management Program in Systemic Sclerosis
Q39444550Skin and mucosa care in systemic sclerosis--patients' and family caregivers' experiences and expectations of a specific education programme: a qualitative study
Q48415515Taking charge of systemic sclerosis: a pilot study to assess the effectiveness of an internet self-management program
Q36492239The educational needs of people with systemic sclerosis: a cross-sectional study using the Dutch version of the Educational Needs Assessment Tool (D-ENAT).
Q52655851The patient experience of Raynaud's phenomenon in systemic sclerosis.

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