| review article | Q7318358 |
| scholarly article | Q13442814 |
| P50 | author | Vicki Xafis | Q60652861 |
| P2093 | author name string | Dominic Wilkinson | |
| Lachlan de Crespigny | |||
| P2860 | cites work | Updated national birth prevalence estimates for selected birth defects in the United States, 2004-2006 | Q22252926 |
| Holoprosencephaly survival and performance | Q33772597 | ||
| Lethal malformations and perinatal mortality: a 10 year review with comparison of ethnic differences | Q34070982 | ||
| Words matter: nomenclature and communication in perinatal medicine | Q34190691 | ||
| Value neutrality in genetic counseling: an unattained ideal | Q34227230 | ||
| The experience of families with children with trisomy 13 and 18 in social networks | Q34289942 | ||
| When life-sustaining treatment is withdrawn and the patient doesn't die | Q34375968 | ||
| Long-term survival in typical thanatophoric dysplasia type 1. | Q34428723 | ||
| Creation of a neonatal end-of-life palliative care protocol. | Q34596082 | ||
| The natural history of pregnancies with a diagnosis of trisomy 18 or trisomy 13; a retrospective case series | Q35044302 | ||
| Is current practice around late termination of pregnancy eugenic and discriminatory? Maternal interests and abortion | Q35422343 | ||
| Shared decision making and non-directiveness in genetic counselling | Q35434032 | ||
| Anencephaly: do the pregnancy and maternal characteristics impact the pregnancy outcome? | Q35825581 | ||
| The risk of fetal loss following a prenatal diagnosis of trisomy 13 or trisomy 18 | Q58133789 | ||
| Lethal congenital anomalies | Q61822499 | ||
| Changes in fetal prevalence and outcome for trisomies 13 and 18: a population-based study over 23 years | Q61850578 | ||
| When Is Termination of Pregnancy during the Third Trimester Morally Justifiable? | Q61901859 | ||
| Who Defines Futility? | Q68509598 | ||
| Prolonged survival of two anencephalic infants | Q70667215 | ||
| Long survival in trisomy-13-syndrome: 21 cases including prolonged survival in two patients 11 and 19 years old | Q70931049 | ||
| Survival of infants with neural tube defects in Western Australia 1966-1990 | Q72899525 | ||
| Long-term survival in Patau syndrome | Q73778860 | ||
| The rise and fall of the futility movement | Q74055499 | ||
| Unusually prolonged survival and childhood-onset epilepsy in a case of alobar holoprosencephaly | Q77957301 | ||
| The health-care experiences of families given the prenatal diagnosis of trisomy 18 | Q80424382 | ||
| Regarding trisomy 18 | Q82784505 | ||
| Fetal counselling for surgical conditions | Q82810949 | ||
| Survey of physicians' approach to severe fetal anomalies | Q83301080 | ||
| Perinatal care and outcome of fetuses with trisomies 13 and 18 following a parental decision not to terminate the pregnancy | Q83448556 | ||
| Analysis of skeletal dysplasias in the Utah population | Q83771855 | ||
| Multidisciplinary palliative care in unborn and newborn babies | Q83830068 | ||
| Holoprosencephaly in hungary: birth prevalence and clinical spectrum | Q83941994 | ||
| Who is "too sick to benefit"? | Q84553533 | ||
| Misgivings | Q84639615 | ||
| Lethality begets lethality | Q84859724 | ||
| Natural outcome of trisomy 13, trisomy 18, and triploidy after prenatal diagnosis | Q85077555 | ||
| The impact of cardiac surgery in patients with trisomy 18 and trisomy 13 in Japan | Q85077575 | ||
| Antenatal diagnosis of trisomy 18, harm and parental choice | Q85239225 | ||
| He was my son, not a dying baby | Q85239227 | ||
| Palliative care in the fetus and newborn | Q36453806 | ||
| Palliative care for the family carrying a fetus with a life-limiting diagnosis | Q36969593 | ||
| Palliative care for prenatally diagnosed lethal fetal abnormality | Q37174618 | ||
| Mortality and morbidity of VLBW infants with trisomy 13 or trisomy 18 | Q37522919 | ||
| Perinatal management of trisomy 18: a survey of obstetricians in Australia, New Zealand and the UK | Q37658479 | ||
| The natural history of anencephaly | Q37701795 | ||
| Knowing when to stop: futility in the ICU. | Q37835671 | ||
| Medical futility: its meaning and ethical implications | Q37923286 | ||
| Fatally flawed? A review and ethical analysis of lethal congenital malformations | Q38029000 | ||
| Antenatal diagnosis and management of life-limiting conditions | Q38051939 | ||
| "My baby is a person": parents' experiences with life-threatening fetal diagnosis | Q39687845 | ||
| 20-year survival of children born with congenital anomalies: a population-based study | Q39907766 | ||
| Aggressive intrapartum management of lethal fetal anomalies: beyond fetal beneficence | Q40555857 | ||
| Deaths associated with renal agenesis: a population-based study of birth prevalence, case ascertainment, and etiologic heterogeneity | Q40601720 | ||
| Lethal congenital anomalies as a cause of birth-weight-specific neonatal mortality | Q41443474 | ||
| Empirical evidence that genetic counseling is directive: where do we go from here? | Q43108893 | ||
| Trisomy 18 and complex congenital heart disease: seeking the threshold benefit | Q43407171 | ||
| Reported communication ability of persons with trisomy 18 and trisomy 13. | Q43468284 | ||
| Decision-making for termination of pregnancies with fetal anomalies: analysis of 53,000 pregnancies | Q43543240 | ||
| Emotional reactions in women in late pregnancy (24 weeks or longer) following the ultrasound diagnosis of a severe or lethal fetal malformation | Q43977315 | ||
| Twenty-five-year survival of children with birth defects in New York State: a population-based study | Q44454854 | ||
| Responsibly counselling women about the clinical management of pregnancies complicated by severe fetal anomalies | Q44536125 | ||
| Natural history of fetal trisomy 18 after prenatal diagnosis | Q46678859 | ||
| Spontaneous pregnancy outcome after prenatal diagnosis of anencephaly | Q47856793 | ||
| Care of an infant with lethal malformation: where do we draw the line? | Q48530372 | ||
| The self-fulfilling prophecy in intensive care. | Q48946344 | ||
| An ethically justified, clinically comprehensive management strategy for third-trimester pregnancies complicated by fetal anomalies. | Q49077373 | ||
| Successful in utero intervention for bilateral renal agenesis. | Q51711806 | ||
| Length of life and treatment intensity in infants diagnosed prenatally or postnatally with congenital anomalies considered to be lethal. | Q51738979 | ||
| Termination of pregnancy following prenatal diagnosis in France: how severe are the foetal anomalies? | Q51850514 | ||
| Ethical dimensions of non-aggressive fetal management. | Q51958002 | ||
| A retrospective survey of perinatal risk factors of 104 living children with holoprosencephaly. | Q52088997 | ||
| Hypoplastic left heart syndrome: valuing the survival. | Q52169730 | ||
| Growth and development in thanatophoric dysplasia. | Q52245525 | ||
| Nonaggressive obstetric management. An option for some fetal anomalies during the third trimester. | Q52245994 | ||
| Trisomy 13 and 18 and quality of life: treading "softly". | Q53034687 | ||
| An infant with trisomy 18 and a ventricular septal defect. | Q53045543 | ||
| Lethal language, lethal decisions. | Q53387227 | ||
| Fetal anomalies: ethical and legal considerations in screening, detection, and management | Q53390904 | ||
| Eugenics and nondirectiveness in genetic counseling. | Q53595199 | ||
| First 25 years of the Hungarian congenital abnormality registry. | Q53597336 | ||
| The fetus as a patient: an essential ethical concept for maternal-fetal medicine. | Q53623723 | ||
| Is Futility a Futile Concept? | Q53645853 | ||
| Our children are not a diagnosis: the experience of parents who continue their pregnancy after a prenatal diagnosis of trisomy 13 or 18. | Q54482744 | ||
| Survival of trisomy 18 (Edwards syndrome) and trisomy 13 (Patau Syndrome) in England and Wales: 2004-2011 | Q58133722 | ||
| P275 | copyright license | Creative Commons Attribution-NonCommercial-NoDerivs 4.0 International | Q24082749 |
| P2507 | corrigendum / erratum | Corrigendum to "Ethical language and decision-making for prenatally diagnosed lethal malformations" [Semin Fetal Neonatal Med 19 (5) (2014) 306-311] | Q42357983 |
| P433 | issue | 5 | |
| P921 | main subject | research ethics | Q1132684 |
| decision making | Q1331926 | ||
| P304 | page(s) | 306-311 | |
| P577 | publication date | 2014-09-05 | |
| 2014-10-01 | |||
| P1433 | published in | Seminars in Fetal and Neonatal Medicine | Q15752270 |
| P1476 | title | Ethical language and decision-making for prenatally diagnosed lethal malformations | |
| P478 | volume | 19 |
| Q35610467 | Barriers in referring neonatal patients to perinatal palliative care: a French multicenter survey |
| Q38950171 | Evidence-based, ethically justified counseling for fetal bilateral renal agenesis |
| Q50456521 | Incompatible with Care: Examining Trisomy 18 Medical Discourse and Families' Counter-discourse for Recuperative Ethos |
| Q53107310 | Lethal fetal abnormalities: how to approach perinatal palliative care? |
| Q52150505 | Medical and ethical challenges in the case of a prenatally undiagnosed massive congenital brain tumor. |
| Q64893554 | Pena-Shokeir syndrome: current management strategies and palliative care. |
| Q88609522 | Prenatal counseling and parental decision-making following a fetal diagnosis of trisomy 13 or 18 |
| Q38684822 | Severe Fetal Abnormality and Outcomes of Continued Pregnancies: A French Multicenter Retrospective Study |
| Q61453540 | Survival and healthcare utilization of infants diagnosed with lethal congenital malformations |
| Q38787482 | The 'ouR-HOPE' approach for ethics and communication about neonatal neurological injury |
| Q39494508 | Trisomy 13 and 18: Selecting the road previously not taken |
| Q42357983 | Corrigendum to "Ethical language and decision-making for prenatally diagnosed lethal malformations" [Semin Fetal Neonatal Med 19 (5) (2014) 306-311] | main subject | P921 |
Search more.