| scholarly article | Q13442814 |
| P6179 | Dimensions Publication ID | 1004582856 |
| P356 | DOI | 10.1186/S12910-016-0149-6 |
| P932 | PMC publication ID | 5096300 |
| P698 | PubMed publication ID | 27809825 |
| P50 | author | Alessandro Blasimme | Q54455456 |
| Effy Vayena | Q46003499 | ||
| P2860 | cites work | Redefining genomic privacy: trust and empowerment | Q24288796 |
| Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago. | Q55244429 | ||
| “Tailored-to-You”: Public Engagement and the Political Legitimation of Precision Medicine | Q57403648 | ||
| Disclosing Results to Genomic Research Participants: Differences That Matter | Q57403664 | ||
| Autonomy: a moral good, not a moral obsession | Q70674762 | ||
| Data sharing in genomics--re-shaping scientific practice | Q24550016 | ||
| From patients to partners: participant-centric initiatives in biomedical research | Q27016065 | ||
| Bringing the Common Rule into the 21st Century | Q28596070 | ||
| Do researchers have an obligation to actively look for genetic incidental findings? | Q28654427 | ||
| Subjects no more: what happens when trial participants realize they hold the power? | Q28659882 | ||
| Ethical implications of the use of whole genome methods in medical research | Q28751851 | ||
| The Path to Personalized Medicine | Q29541502 | ||
| A new initiative on precision medicine | Q29615654 | ||
| Framing genomics, public health research and policy: points to consider | Q30388137 | ||
| Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective | Q30887395 | ||
| Structuring public engagement for effective input in policy development on human tissue biobanking | Q33869885 | ||
| Models of consent to return of incidental findings in genomic research | Q33934216 | ||
| The regulation of human research--reflections and proposals | Q34413402 | ||
| Research led by participants: a new social contract for a new kind of research | Q34469468 | ||
| Have we asked too much of consent? | Q34598781 | ||
| Adapting standards: ethical oversight of participant-led health research | Q34647674 | ||
| Direct-to-consumer genomics on the scales of autonomy | Q35351251 | ||
| Human genetic research: emerging trends in ethics | Q35998786 | ||
| Theoretical directions for an emancipatory concept of patient and public involvement | Q38005652 | ||
| Participatory medicine: a driving force for revolutionizing healthcare | Q38646666 | ||
| Defining digital medicine | Q40279540 | ||
| The social and ethical issues of post-genomic human biobanks | Q42639498 | ||
| Genetic incidental findings: autonomy regained? | Q42875869 | ||
| (Almost) everything you ever wanted to know about informed consent. [Review of: Faden, RR and Beauchamp, TL. A history and theory of informed concsent. New York and Oxford: Oxford University Press, 1986]. | Q47401254 | ||
| From passengers to co-pilots: Patient roles expand | Q48034391 | ||
| Engaging the public on biobanks: outcomes of the BC biobank deliberation | Q48286546 | ||
| Genomic incidental findings: reducing the burden to be fair | Q48303246 | ||
| The communitarian turn: myth or reality? | Q48611579 | ||
| Reforming the regulations governing research with human subjects | Q48624260 | ||
| Public bioethics and public engagement: the politics of "proper talk". | Q48812146 | ||
| Human experimentation and human rights. | Q53675595 | ||
| P433 | issue | 1 | |
| P921 | main subject | medical ethics | Q237151 |
| research ethics | Q1132684 | ||
| P304 | page(s) | 67 | |
| P577 | publication date | 2016-11-04 | |
| P1433 | published in | BMC Medical Ethics | Q15762173 |
| P1476 | title | Becoming partners, retaining autonomy: ethical considerations on the development of precision medicine | |
| P478 | volume | 17 |
| Q50104994 | Big Data and Dementia: Charting the Route Ahead for Research, Ethics, and Policy |
| Q45934130 | Biomedical Big Data: New Models of Control Over Access, Use and Governance. |
| Q42627741 | Collaborative partnership and the social value of clinical research: a qualitative secondary analysis |
| Q61448440 | Elements of Trust in Digital Health Systems: Scoping Review |
| Q90399971 | Health Research with Big Data: Time for Systemic Oversight |
| Q93148035 | Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons |
| Q28595738 | Introduction to the article collection 'Translation in healthcare: ethical, legal, and social implications' |
| Q57634136 | On Female Genital Cutting: Factors to be Considered When Confronted With a Request to Re-infibulate |
| Q33755391 | Parents' Attitudes toward Clinical Genetic Testing for Autism Spectrum Disorder-Data from a Norwegian Sample |
| Q97435323 | Rethinking the Importance of the Individual within a Community of Data |
| Q64087553 | Taking patient involvement seriously: a critical ethical analysis of participatory approaches in data-intensive medical research |
| Q93148061 | The Role of Participants in a Medical Information Commons |
| Q93066755 | The regulation of clinical research: What's love got to do with it? |
| Q60932518 | User Perspectives of a Web-Based Data-Sharing Platform (Open Humans) on Ethical Oversight in Participant-Led Research: Protocol for a Quantitative Study |
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