| P2093 | author name string | Barbara A Koenig | |
| | Juli M Bollinger | |
| | Mary A Majumder | |
| | Patricia A Deverka | |
| | Angela G Villanueva | |
| P2860 | cites work | Learning From Others: Lessons for Improving Collaborations Between Stakeholders and Researchers | Q58743352 |
| | Effective Engagement Requires Trust and Being Trustworthy | Q58743353 |
| | Patient Governance in a Patient-Powered Research Network for Adult Rheumatologic Conditions | Q58743355 |
| | Multistakeholder Engagement in PCORnet, the National Patient-Centered Clinical Research Network | Q58743358 |
| | A Multilevel Approach to Stakeholder Engagement in the Formulation of a Clinical Data Research Network | Q58743980 |
| | Building Meaningful Patient Engagement in Research: Case Study From ADVANCE Clinical Data Research Network | Q58743986 |
| | Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons | Q64110931 |
| | Introduction: Sharing Data in a Medical Information Commons | Q93147947 |
| | What is a Medical Information Commons? | Q93147993 |
| | Characterizing the Biomedical Data-Sharing Landscape | Q93148021 |
| | Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives | Q24658620 |
| | Lessons Learned from Developing a Patient Engagement Panel: An OCHIN Report | Q26782045 |
| | From patients to partners: participant-centric initiatives in biomedical research | Q27016065 |
| | Engagement, peer production, and the learning healthcare system | Q28597510 |
| | Patient-powered research networks: building capacity for conducting patient-centered clinical outcomes research | Q28656419 |
| | Disentangling public participation in science and biomedicine | Q28660335 |
| | A new initiative on precision medicine | Q29615654 |
| | Participatory Genomic Research: Ethical Issues from the Bottom Up to the Top Down | Q30491452 |
| | Becoming partners, retaining autonomy: ethical considerations on the development of precision medicine | Q36181509 |
| | Community Engagement Studios: A Structured Approach to Obtaining Meaningful Input From Stakeholders to Inform Research | Q36302515 |
| | Patient informed governance of distributed research networks: results and discussion from six patient focus groups | Q37509017 |
| | Harvard Personal Genome Project: lessons from participatory public research | Q37689649 |
| | Patient focused registries can improve health, care, and science | Q37722742 |
| | Information technology to support patient engagement: where do we stand and where can we go? | Q38434113 |
| | Barriers to Effective Deliberation in Clinical Research Oversight | Q38650451 |
| | The Precision Medicine Initiative's All of Us Research Program: an agenda for research on its ethical, legal, and social issues | Q39032745 |
| | The PCORI Engagement Rubric: Promising Practices for Partnering in Research | Q39176581 |
| | Creating a data resource: what will it take to build a medical information commons? | Q42127153 |
| | A Culture of Understanding: Reflections and Suggestions from a Genomics Research Community Board | Q46735905 |
| | Barbarians at the Gate: Consumer-Driven Health Data Commons and the Transformation of Citizen Science | Q46863348 |
| | How are PCORI-funded researchers engaging patients in research and what are the ethical implications? | Q47260116 |
| | Genomics England's implementation of its public engagement strategy: Blurred boundaries between engagement for the United Kingdom's 100,000 Genomes project and the need for public support. | Q47309224 |
| | Genuine participation in participant-centred research initiatives: the rhetoric and the potential reality. | Q47642418 |
| | Epistemic injustice in dementia and autism patient organizations: An empirical analysis | Q48341480 |
| | Stakeholder engagement in patient-centered outcomes research: high-touch or high-tech? | Q53139855 |
| | Patient and family engagement: a framework for understanding the elements and developing interventions and policies. | Q55056999 |
| | Assessing the Financial Value of Patient Engagement: A Quantitative Approach from CTTI's Patient Groups and Clinical Trials Project. | Q55259029 |
| | Exploring Meaningful Patient Engagement in ADAPTABLE (Aspirin Dosing: A Patient-centric Trial Assessing Benefits and Long-term Effectiveness) | Q56523979 |
| | Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research | Q56558384 |
| | From consent to institutions: designing adaptive governance for genomic biobanks | Q56776803 |
| | Patient vs. Community Engagement: Emerging Issues | Q57143442 |
| | A Novel Stakeholder Engagement Approach for Patient-centered Outcomes Research | Q58743336 |
| | Engagement in PCORnet Research Networks | Q58743342 |
| | Crohn's and Colitis Foundation of America Partners Patient-Powered Research Network: Patient Perspectives on Facilitators and Barriers to Building an Impactful Patient-Powered Research Network | Q58743345 |
| | Engaging Stakeholders to Develop a Patient-centered Research Agenda: Lessons Learned From the Research Action for Health Network (REACHnet) | Q58743347 |
| P433 | issue | 1 | |
| P304 | page(s) | 51-61 | |
| P577 | publication date | 2019-03-01 | |
| P1433 | published in | Journal of Law, Medicine, and Ethics | Q15760852 |
| P1476 | title | The Role of Participants in a Medical Information Commons | |
| P478 | volume | 47 | |