Questioning assent: how are children's views included as families make decisions about clinical trials?

scientific article published on 02 May 2016

Questioning assent: how are children's views included as families make decisions about clinical trials? is …
instance of (P31):
scholarly articleQ13442814

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P356DOI10.1111/CCH.12347
P932PMC publication ID5082536
P698PubMed publication ID27136194

P50authorKerry WoolfallQ56508033
Louise MaddenQ58131085
P2093author name stringB Young
P R Williamson
R L Smyth
V Shilling
E Sowden
P2860cites workHow do parents experience being asked to enter a child in a randomised controlled trial?Q33409753
Communication about children's clinical trials as observed and experienced: qualitative study of parents and practitionersQ33963792
Assent is not consent.Q34102608
Pediatric clinical trial experience: government, child, parent and physician's perspectiveQ35612817
Faith and protection: the construction of hope by parents of children with leukemia and their oncologistsQ35863896
Comparisons of adolescent and parent willingness to participate in minimal and above-minimal risk pediatric asthma research protocolsQ36012391
Children's competence for assent and consent: a review of empirical findingsQ36117048
Children as partners with adults in their medical careQ36121179
Involving children with cancer in decision-making about research participationQ36669850
Competent children? Minors' consent to health care treatment and researchQ36940227
Assessment of children's capacity to consent for research: a descriptive qualitative study of researchers' practices.Q37884279
Participation in medical research; a systematic review of the understanding and experience of children and adolescentsQ37948377
Assent for children's participation in research is incoherent and wrongQ38384538
Processes in recruitment to randomised controlled trials of medicines for children (RECRUIT): a qualitative studyQ46498288
Empty ethics: the problem with informed consentQ47413950
Child assent and parental permission in pediatric researchQ47661536
Family patterns of decision-making in pediatric clinical trialsQ48448128
"My parents decide if I can. I decide if I want to." Children's views on participation in medical researchQ48500862
Children's consent to research participation: social context and personal experience invalidate fixed cutoff rulesQ48562079
Accuracy of the MacArthur competence assessment tool for clinical research (MacCAT-CR) for measuring children's competence to consent to clinical research.Q50617649
Decision-making by adolescents and parents of children with cancer regarding health research participation.Q50732271
Do they understand? (part II): assent of children participating in clinical anesthesia and surgery research.Q51304562
Children's competence to consent to medical treatment.Q51907260
Harmonization of Ethics Policies in Pediatric ResearchQ58376025
Qualitative research methods in health technology assessment: a review of the literatureQ77907653
Distributed decision making: the anatomy of decisions-in-actionQ80490849
The micropolitics of responsibility vis-à-vis autonomy: parental accounts of childhood genetic testing and (non)disclosureQ80747941
Regulating trust in pediatric clinical trialsQ81660163
P433issue6
P407language of work or nameEnglishQ1860
P304page(s)900-908
P577publication date2016-05-02
P1433published inChild: Care, Health and DevelopmentQ5097678
P1476titleQuestioning assent: how are children's views included as families make decisions about clinical trials?
P478volume42

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cites work (P2860)
Q64243574Assent and consent in pediatric and adolescent research: school children's perspectives
Q55338900Children's views on research without prior consent in emergency situations: a UK qualitative study.
Q93083548DIABRISK-SL trial: further consideration of age and impact of imputations
Q59794280Protective parents and permissive children: what qualitative interviews with parents and children can tell us about the feasibility of juvenile idiopathic arthritis trials
Q92702111Researching the Experiences of Children with Cancer: Considerations for Practice