Cystic fibrosis: to screen or not to screen? Involving a Citizens' jury in decisions on screening carrier

scientific article published on 9 September 2014

Cystic fibrosis: to screen or not to screen? Involving a Citizens' jury in decisions on screening carrier is …
instance of (P31):
scholarly articleQ13442814

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P356DOI10.1111/HEX.12261
P932PMC publication ID5810749
P698PubMed publication ID25200794
P5875ResearchGate publication ID265471223

P50authorPaola MosconiQ39186623
Walter VillaniQ59678000
P2093author name stringCarlo Castellani
Roberto Satolli
P2860cites workIdentification of the cystic fibrosis gene: cloning and characterization of complementary DNAQ28119124
Disease mongering is now part of the global health debateQ28752656
A Community Jury on PSA screening: what do well-informed men want the government to do about prostate cancer screening--a qualitative analysisQ30577573
Involving the public in rationing decisions. The experience of citizens juriesQ33927191
Genetic screening for cystic fibrosisQ34729081
My health: whose responsibility? A jury decidesQ35011800
What is a disease? Perspectives of the public, health professionals and legislators.Q36496290
Economic evaluation of cystic fibrosis screening: a review of the literatureQ36922685
PartecipaSalute, an Italian project to involve lay people, patients' associations and scientific-medical representatives in the health debateQ37332100
Attitudes of health care professionals toward carrier screening for cystic fibrosis. A review of the literature.Q37471817
Benchmarks for cystic fibrosis carrier screening: a European consensus documentQ37723753
ACOG Committee Opinion No. 486: Update on carrier screening for cystic fibrosisQ37855469
The future of medicine lies in truly shared decision makingQ39418976
Let the patient revolution beginQ44556165
Association between carrier screening and incidence of cystic fibrosisQ44566434
Cost-effectiveness of carrier screening for cystic fibrosis in Australia.Q44607917
Too much medicine; too little careQ45274536
The Cystic Fibrosis mutation "arms race": when less is moreQ46051829
Laboratory standards and guidelines for population-based cystic fibrosis carrier screeningQ46673370
Genetic testing for cystic fibrosisQ74416817
A survey of newborn screening for cystic fibrosis in EuropeQ79998370
Making policy decisions about population screening for breast cancer: the role of citizens' deliberationQ81430788
Ability to pay and equity in access to Italian and British National Health ServicesQ82832623
A case for cystic fibrosis carrier testing in the general populationQ83605838
Patients' responsibility to participate in decision making and researchQ86842652
P433issue6
P921main subjectcystic fibrosisQ178194
P304page(s)1956-1967
P577publication date2014-09-09
P1433published inHealth ExpectationsQ15753949
P1476titleCystic fibrosis: to screen or not to screen? Involving a Citizens' jury in decisions on screening carrier
P478volume18

Reverse relations

cites work (P2860)
Q38972622CJCheck Stage 1: development and testing of a checklist for reporting community juries - Delphi process and analysis of studies published in 1996-2015.
Q53836050Deciding on cystic fibrosis carrier screening: three citizens' juries and an online survey.
Q90436218Effect of Public Deliberation on Patient Attitudes Regarding Consent and Data Use in a Learning Health Care System for Oncology
Q92079526Identifying Perceptions and Preferences of the General Public Concerning Universal Screening of Children for Familial Hypercholesterolaemia
Q35889895Involving a Citizens' Jury in Decisions on Individual Screening for Prostate Cancer
Q42650006Public Views on Genetics and Genetic Testing: A Survey of the General Public in Belgium

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