Disclosure of genetics research results after the death of the patient participant: a qualitative study of the impact on relatives.

scientific article published on 11 May 2007

Disclosure of genetics research results after the death of the patient participant: a qualitative study of the impact on relatives. is …
instance of (P31):
scholarly articleQ13442814

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P356DOI10.1007/S10897-007-9088-1
P698PubMed publication ID17492498

P50authorRosalind EelesQ24640445
Claire FosterQ56432355
Elizabeth OrmondroydQ56545413
Sue DavollsQ64252617
P2093author name stringM Watson
C Moynihan
A Ardern-Jones
P2860cites workHuman genetic research, DNA banking and consent: a question of 'form'?Q30664023
Evaluation of the needs of male carriers of mutations in BRCA1 or BRCA2 who have undergone genetic counselingQ34144333
Two percent of men with early-onset prostate cancer harbor germline mutations in the BRCA2 geneQ34354479
Disclosing individual results of clinical research: implications of respect for participantsQ34441798
Ethical, legal, and practical concerns about recontacting patients to inform them of new information: the case in medical geneticsQ34464458
'Coming down the line'-- patients' understanding of their family history of common chronic disease.Q34629496
Psychological impact of genetic counseling for familial cancer: a systematic review and meta-analysisQ35634237
Perception of risk in women with a family history of breast cancerQ35976086
Disclosure of genetic information obtained through researchQ36052698
Men's decision-making about predictive BRCA1/2 testing: the role of family.Q36164813
Factors associated with emotional and behavioural problems among school age children of breast cancer patientsQ36613470
The impact of genetic counselling on risk perception and mental health in women with a family history of breast cancer.Q36618985
Predictive testing for BRCA1/2: attributes, risk perception and management in a multi-centre clinical cohortQ36644314
Research samples from families with genetic diseases: a proposed code of conductQ40382480
Oncology physician and nurse practices and attitudes regarding offering clinical trial results to study participantsQ40515868
Offering results to research participantsQ43186739
Performance of breast self-examination by women at high risk for breast cancerQ43976858
Duty to recontact: a legal harbinger?Q44967970
Personal theories of inheritance, coping strategies, risk perception and engagement in hereditary non-polyposis colon cancer families offered genetic testingQ47381625
Ethical issues in genetic research: disclosure and informed consentQ48056443
Informing one's family about genetic testing for hereditary non-polyposis colorectal cancer (HNPCC): a retrospective exploratory studyQ48485451
Relation of family history of prostate cancer to perceived vulnerability and screening behavior.Q48559708
Predictive testing for BRCA1 and 2 mutations: a male contributionQ48601921
Genetic testing for breast and ovarian cancer predisposition: cancer burden and responsibilityQ48629855
Cognitive representations of breast cancer, emotional distress and preventive health behaviour: a theoretical perspective.Q51070582
Psychosocial factors predicting BRCA1/BRCA2 testing decisions in members of hereditary breast and ovarian cancer families.Q51076471
Effect of fear-arousing communications.Q51367566
Communication about genetic testing in families of male BRCA1/2 carriers and non-carriers: patterns, priorities and problemsQ57694564
Genetic predisposition to prostate cancerQ57694715
Women with breast cancer: perception of family functioning and adjustment to illnessQ67961689
How families communicate about HNPCC genetic testing: Findings from a qualitative studyQ73293994
Risk perception, screening practice and interest in genetic testing among unaffected men in families with hereditary prostate cancerQ73603283
The effect of experiential knowledge on construction of risk perception in hereditary breast/ovarian cancerQ81571149
P433issue4
P407language of work or nameEnglishQ1860
P921main subjectpatientQ181600
P304page(s)527-538
P577publication date2007-05-11
P1433published inJournal of Genetic CounselingQ6295247
P1476titleDisclosure of genetics research results after the death of the patient participant: a qualitative study of the impact on relatives.
P478volume16

Reverse relations

cites work (P2860)
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