| review article | Q7318358 |
| scholarly article | Q13442814 |
| P2093 | author name string | Hanno L Tan | |
| Marieke T Blom | |||
| Dick L Willems | |||
| M Corrette Ploem | |||
| Hakan Ateşyürek | |||
| Marieke A R Bak | |||
| P2860 | cites work | Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement | Q21562278 |
| Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature | Q27007817 | ||
| Improving the informed consent process in international collaborative rare disease research: effective consent for effective research | Q27324539 | ||
| The Cooperative Health Research in South Tyrol (CHRIS) study: rationale, objectives, and preliminary results | Q28607743 | ||
| Big data analytics in healthcare: promise and potential | Q28649383 | ||
| Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting | Q28659644 | ||
| Promoting continence--continence advice | Q69587631 | ||
| Medical confidentiality after a patient's death, with particular reference to The Netherlands | Q74336702 | ||
| Communication of clinically useful next-generation sequencing results to at-risk relatives of deceased research participants: toward active disclosure? | Q86486346 | ||
| Attitudes Toward Return of Genetic Research Results to Relatives, Including After Death: Comparison of Cancer Probands, Blood Relatives, and Spouse/Partners | Q88490837 | ||
| Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants | Q90218587 | ||
| Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences | Q90820663 | ||
| Practice variation across consent templates for biobank research. a survey of German biobanks | Q28661607 | ||
| Biobank research and ethics: the problem of informed consent in Polish biobanks | Q28732816 | ||
| Data storage and DNA banking for biomedical research: technical, social and ethical issues | Q30882730 | ||
| Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives | Q33924683 | ||
| Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project | Q34106590 | ||
| Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death | Q36197051 | ||
| Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank | Q36197062 | ||
| Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families | Q36197067 | ||
| Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations | Q36197112 | ||
| Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject | Q36197118 | ||
| Return of Genetic Research Results to Participants and Families: IRB Perspectives and Roles | Q36198371 | ||
| Communicating genetic information in the family: the familial relationship as the forgotten factor | Q36865384 | ||
| Informed consent for return of incidental findings in genomic research | Q37722733 | ||
| Discordance in selected designee for return of genomic findings in the event of participant death and estate executor | Q37725816 | ||
| Biobanking and deceased persons | Q37894578 | ||
| Genetic discrimination: international perspectives | Q38011240 | ||
| Postmortem disclosure of genetic information to family members: active or passive? | Q38368064 | ||
| Evidence of broad-based family support for the use of archival childhood tumour samples in future research | Q38380399 | ||
| 'Mirroring' the ethics of biobanking: what should we learn from the analysis of consent documents[corrected]? | Q38403873 | ||
| Impact of a genetic diagnosis of a mitochondrial disorder 5-17 years after the death of an affected child. | Q39323888 | ||
| Genetics and the dead: implications for genetics research with samples from deceased persons | Q41425465 | ||
| A Duty To Warn Relatives in Clinical Genetics: Arguably 'Fair just and reasonable' in English Law? | Q42078923 | ||
| Geneticists push for global data-sharing | Q42602288 | ||
| Tumour regression and relapse in mice inoculated with murine sarcoma virus (Moloney). | Q45815153 | ||
| Data donation after death. | Q45934832 | ||
| Last rights: the ethics of research on the dead | Q47430179 | ||
| Disclosure of genetics research results after the death of the patient participant: a qualitative study of the impact on relatives. | Q51986347 | ||
| The return of results of deceased research participants. | Q53141948 | ||
| Genetic databases and consent for use of medical records. | Q53278486 | ||
| Ethics of dead participants: policy recommendations for biobank research | Q56536850 | ||
| Ethical aspects of sudden cardiac arrest research using observational data: a narrative review | Q56888111 | ||
| Attitudes of parents toward the return of targeted and incidental genomic research findings in children | Q57642631 | ||
| Communicating genetics research results to families: problems arising when the patient participant is deceased | Q57694475 | ||
| Enabling Posthumous Medical Data Donation: An Appeal for the Ethical Utilisation of Personal Health Data | Q57794583 | ||
| Disclosing Individual Genetic Research Results to Deceased Participants’ Relatives by Means of a Qualified Disclosure Policy | Q57989212 | ||
| Grave secrets: legal and ethical analysis of postmortem confidentiality | Q58668892 | ||
| The emergence of an ethical duty to disclose genetic research results: international perspectives | Q58674081 | ||
| Post-mortem privacy and informational self-determination | Q59516895 | ||
| A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research | Q64071603 | ||
| Genetic databases: assessing the benefits and the impact on human and patient rights--a WHO report | Q64452608 | ||
| P433 | issue | 4 | |
| P921 | main subject | systematic review | Q1504425 |
| P304 | page(s) | 403-416 | |
| P577 | publication date | 2019-09-16 | |
| P1433 | published in | European Journal of Human Genetics | Q2155433 |
| P1476 | title | Stakeholders' perspectives on the post-mortem use of genetic and health-related data for research: a systematic review | |
| P478 | volume | 28 |
| Q90598694 | ESHG PPPC Comments on postmortem use of genetic data for research purposes | cites work | P2860 |
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