scholarly article | Q13442814 |
P50 | author | Bartha Knoppers | Q2885924 |
Adrian Thorogood | Q40164567 | ||
P2093 | author name string | Gratien Dalpé | |
P2860 | cites work | Morally Relevant Similarities and Differences Between Children and Dementia Patients as Research Subjects: Representation in Legal Documents and Ethical Guidelines | Q47935653 |
Barriers and facilitators to the consent process in a study of complex genetic factors | Q48041299 | ||
A Practical Approach to Including Adults Unable to Consent in Research | Q49963402 | ||
Pediatric Exclusivity and Regulatory Authority: Implications of Amgen v HHS. | Q50105613 | ||
Lost in the present but confident of the past: experiences of being in a psycho-geriatric unit as narrated by persons with dementia. | Q50875371 | ||
Is best interests a relevant decision making standard for enrolling non-capacitated subjects into clinical research? | Q51833310 | ||
Giving consent in dementia research. | Q51888237 | ||
People with dementia and their relatives: personal experiences of Alzheimer's and of the provision of care. | Q53392738 | ||
Capacity, Vulnerability, and Informed Consent for Research. | Q55458665 | ||
Key Implications of Data Sharing in Pediatric Genomics | Q56398210 | ||
Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance | Q56476495 | ||
Data Sharing Statements for Clinical Trials: A Requirement of the International Committee of Medical Journal Editors | Q56481465 | ||
Recontacting Pediatric Research Participants for Consent When They Reach the Age of Majority | Q56764891 | ||
Engaging children in genomics research: decoding the meaning of assent in research | Q56774935 | ||
Ethical issues in health research in children | Q56783697 | ||
Presenting research information to children: a tale of two methods | Q56785959 | ||
Consent recommendations for research and international data sharing involving persons with dementia | Q57189717 | ||
ACMG policy statement: updated recommendations regarding analysis and reporting of secondary findings in clinical genome-scale sequencing | Q57642222 | ||
Legal capacity, mental capacity and supported decision-making: Report from a panel event | Q58584754 | ||
Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: convention on human rights and biomedicine (adopted by the Committee of Ministers on 19 November 1996). Council of E | Q73862510 | ||
Gillick v West Norfolk and Wisbech Area Health Authority | Q74775975 | ||
Involving older people in research: methodological issues | Q81631368 | ||
Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants | Q90218587 | ||
Seeing Beyond the Margins: Challenges to Informed Inclusion of Vulnerable Populations in Research | Q90860073 | ||
Return to childhood? Against the infantilization of people with dementia | Q90936506 | ||
Openness, inclusion, and respect in dementia research | Q91137173 | ||
The Mental Capacity Act 2005: a new framework for healthcare decision making | Q24647837 | ||
The legal authority of mature minors to consent to general medical treatment | Q27003081 | ||
Reflecting on earlier experiences with unsolicited findings: points to consider for next-generation sequencing and informed consent in diagnostics | Q27023696 | ||
Whole-genome sequencing in health care. Recommendations of the European Society of Human Genetics | Q30391597 | ||
Laboratory and clinical genomic data sharing is crucial to improving genetic health care: a position statement of the American College of Medical Genetics and Genomics | Q31152899 | ||
Ethical challenges and solutions regarding delirium studies in palliative care | Q33847797 | ||
Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents | Q34483451 | ||
Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials | Q34860257 | ||
The clinical application of genome-wide sequencing for monogenic diseases in Canada: Position Statement of the Canadian College of Medical Geneticists | Q35848496 | ||
Research involving adults lacking capacity to consent: the impact of research regulation on 'evidence biased' medicine | Q36127478 | ||
Beyond competence: advance directives in dementia research | Q36244985 | ||
Assent in paediatric research: theoretical and practical considerations | Q36436364 | ||
Developing a policy for paediatric biobanks: principles for good practice | Q36497109 | ||
The association of specific neuropsychological deficits with capacity to consent to research or treatment | Q36973867 | ||
Harm, hype and evidence: ELSI research and policy guidance | Q36998724 | ||
Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform | Q37397625 | ||
Informed consent for paediatric clinical trials in Europe | Q37471624 | ||
Clarifying assent in pediatric research | Q37493074 | ||
A typology of reviews: an analysis of 14 review types and associated methodologies | Q37505239 | ||
Reporting results from whole-genome and whole-exome sequencing in clinical practice: a proposal for Canada? | Q38147064 | ||
Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies | Q38176864 | ||
Return of genetic testing results in the era of whole-genome sequencing | Q38560292 | ||
Substitute consent to data sharing: a way forward for international dementia research? | Q38602814 | ||
Assessment of Healthcare Decision-making Capacity | Q38934533 | ||
Pediatric advance directives: parents' knowledge, experience, and preferences | Q39163104 | ||
Informed Consent to Research with Cognitively Impaired Adults: Transdisciplinary Challenges and Opportunities. | Q39269360 | ||
Guidance synthesis. Medical research for and with older people in Europe: proposed ethical guidance for good clinical practice: ethical considerations | Q44248946 | ||
Determinants of Capacity to Consent to Research on Alzheimer's disease | Q46738207 | ||
Developing distress protocols for research on sensitive topics | Q47268880 | ||
P275 | copyright license | Creative Commons Attribution 4.0 International | Q20007257 |
P6216 | copyright status | copyrighted | Q50423863 |
P407 | language of work or name | English | Q1860 |
P304 | page(s) | 289 | |
P577 | publication date | 2019-01-01 | |
P1433 | published in | Frontiers in Genetics | Q2499875 |
P1476 | title | A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research | |
P478 | volume | 10 |
Search more.