scholarly article | Q13442814 |
P50 | author | Christine Patch | Q38360082 |
Aad Tibben | Q40608078 | ||
Anne Cambon-Thomsen | Q42128147 | ||
Pascal Borry | Q46004662 | ||
Kristien Hens | Q55404041 | ||
Martina C. Cornel | Q59206152 | ||
Lisbeth Tranebjærg | Q112037899 | ||
Francesca Forzano | Q112499231 | ||
P2093 | author name string | Kris Dierickx | |
Eric Vermeulen | |||
Elena Salvaterra | |||
Anneke Lucassen | |||
Carla E Van El | |||
PPPC of the European Society of Human Genetics | |||
P2860 | cites work | Genetic testing in asymptomatic minors: background considerations towards ESHG Recommendations | Q24599256 |
Genomics and privacy: implications of the new reality of closed data for the field | Q28254700 | ||
Incidental findings in genetics research using archived DNA | Q28283556 | ||
Human genetic research, DNA banking and consent: a question of 'form'? | Q30664023 | ||
Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective | Q30887395 | ||
Disclosure of individual genetic data to research participants: the debate reconsidered | Q33781801 | ||
Biological sample collections from minors for genetic research: a systematic review of guidelines and position papers | Q34326961 | ||
Disclosing individual genetic results to research participants | Q34579296 | ||
Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework | Q34766838 | ||
Children, biobanks and the scope of parental consent | Q35108619 | ||
Expanding the ethical analysis of biobanks | Q36150078 | ||
Should donors be allowed to give broad consent to future biobank research? | Q36410751 | ||
One-time general consent for research on biological samples | Q36412166 | ||
Ethics of future disclosure of individual risk information in a genetic cohort study: a survey of donor preferences | Q36632066 | ||
Managing incidental findings in human subjects research: analysis and recommendations | Q36954360 | ||
Understanding incidental findings in the context of genetics and genomics | Q36968950 | ||
Ethics and biobanks | Q37080971 | ||
Facilitating pharmacokinetic studies in children: a new use of dried blood spots | Q37760638 | ||
Risks, benefits, solidarity: a framework for the participation of children in genetic biobank research | Q37846948 | ||
The return of individual research findings in paediatric genetic research | Q39819328 | ||
Solidarity and justice as guiding principles in genomic research | Q40175745 | ||
The social and ethical issues of post-genomic human biobanks | Q42639498 | ||
Pediatric biobanking: a pilot qualitative survey of practices, rules, and researcher opinions in ten European countries. | Q42661666 | ||
'Nothing about us without us': considerations for research involving young people | Q43678397 | ||
Informed Consent and the Bio-banking of Material from Children. | Q47172542 | ||
Biobanks: too long to wait for consent | Q48067224 | ||
Biobanks: oversight offers protection | Q48067226 | ||
Research ethics. Children and population biobanks | Q48068534 | ||
Opinions of children about participation in medical genetic research | Q48217876 | ||
Comprehensive catalog of European biobanks | Q48595031 | ||
The storage and use of biological tissue samples from minors for research: a focus group study | Q48835324 | ||
Storage policies and use of the Danish Newborn Screening Biobank. | Q50545746 | ||
Population-based retrieval of newborn dried blood spots for researching paediatric cancer susceptibility genes. | Q51722491 | ||
The consent problem within DNA biobanks. | Q52855245 | ||
Children, longitudinal studies, and informed consent. | Q53270646 | ||
Screening for conditions that do not meet the Wilson and Jungner criteria: the case of Duchenne muscular dystrophy. | Q55041684 | ||
Reporting genetic results in research studies: summary and recommendations of an NHLBI working group. | Q55041761 | ||
Genetic research on stored tissue samples from minors: a systematic review of the ethical literature | Q56781292 | ||
Solidarity and equity: new ethical frameworks for genetic databases | Q56815400 | ||
Deploying whole genome sequencing in clinical practice and public health: meeting the challenge one bin at a time | Q57785176 | ||
Ethical principles and legal requirements for pediatric research in the EU: an analysis of the European normative and legal framework surrounding pediatric clinical trials | Q58669201 | ||
Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion | Q58672001 | ||
StaR Child Health: an initiative for RCTs in children | Q84740622 | ||
P433 | issue | 1 | |
P921 | main subject | biobank | Q864217 |
P304 | page(s) | 2-7 | |
P577 | publication date | 2012-06-20 | |
P1433 | published in | European Journal of Human Genetics | Q2155433 |
P1476 | title | Developing a policy for paediatric biobanks: principles for good practice | |
P478 | volume | 21 |
Q64071603 | A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research |
Q47651934 | A novel metadata management model to capture consent for record linkage in longitudinal research studies. |
Q92518609 | Anticipatory Waivers of Consent for Pediatric Biobanking |
Q50532192 | Attitudes of stakeholders in psychiatry towards the inclusion of children in genomic research. |
Q56545211 | Biobanking in the Pediatric Critical Care Setting: Adolescent/Young Adult Perspectives |
Q37493074 | Clarifying assent in pediatric research |
Q44041326 | Communication of results and disclosure of incidental findings in longitudinal paediatric research |
Q30387871 | Consent procedures in pediatric biobanks |
Q43247033 | Crossing the boundary between research and health care: P3G policy statement on return of results from population studies |
Q58763025 | Equitable Participation in Biobanks: The Risks and Benefits of a "Dynamic Consent" Approach |
Q48091246 | Ethics of children's participation in a Saudi biobank: an exploratory survey. |
Q36193133 | Governing biological material at the intersection of care and research: the use of dried blood spots for biobanking |
Q35188871 | Impacts of a biobank: Bridging the gap in translational cancer medicine |
Q38109552 | Incidental findings from clinical genome-wide sequencing: a review |
Q37546095 | Lay Attitudes Toward Trust, Uncertainty, and the Return of Pediatric Research Results in Biobanking |
Q38947409 | Next-Generation Sequencing and the Return of Results |
Q37568772 | Paediatric biobanking: Dutch experts reflecting on appropriate legal standards for practice |
Q27316610 | Parental perspectives on consent for participation in large-scale, non-biological data repositories |
Q36161881 | Personalized assent for pediatric biobanks |
Q28650458 | Practical guidance on informed consent for pediatric participants in a biorepository |
Q45301831 | Preferences for the Return of Individual Results From Research on Pediatric Biobank Samples |
Q39134731 | Preserving children's fertility: two tales about children's right to an open future and the margins of parental obligations. |
Q57173416 | Reconsidering the Need for Reconsent at 18 |
Q36695820 | Regulating biobanking with children's tissue: a legal analysis and the experts' view |
Q38560292 | Return of genetic testing results in the era of whole-genome sequencing |
Q37397625 | Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform |
Q34318434 | The best interests of the child and the return of results in genetic research: international comparative perspectives |
Q38730911 | The ethics of complexity. Genetics and autism, a literature review |
Q28080169 | When Children Become Adults: Should Biobanks Re-Contact? |
Q30391597 | Whole-genome sequencing in health care. Recommendations of the European Society of Human Genetics |
Q30391601 | Whole-genome sequencing in health care: recommendations of the European Society of Human Genetics |
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