| scholarly article | Q13442814 |
| P50 | author | Bettina Meiser | Q60641709 |
| P2093 | author name string | Kathryn Porter | |
| Aad Tibben | |||
| Holly L Peay | |||
| Kathleen Kinnett | |||
| Pat Furlong | |||
| P2860 | cites work | Loss, trauma, and human resilience: have we underestimated the human capacity to thrive after extremely aversive events? | Q28239977 |
| Dystrophin: the protein product of the Duchenne muscular dystrophy locus | Q29618077 | ||
| Uncertainty and perceived personal control among parents of children with rare chromosome conditions: the role of genetic counseling | Q30441988 | ||
| Distinguishing optimism from neuroticism (and trait anxiety, self-mastery, and self-esteem): a reevaluation of the Life Orientation Test | Q34315511 | ||
| Adaptation to bipolar disorder and perceived risk to children: a survey of parents with bipolar disorder | Q35057420 | ||
| A validity and reliability study of the coping self-efficacy scale | Q35083238 | ||
| Youth Resilience Framework for reducing health-risk behaviors in adolescents | Q35731507 | ||
| Parental stress in mothers of boys with duchenne muscular dystrophy. | Q35910722 | ||
| A review of instruments measuring resilience | Q36505937 | ||
| Adaptation to living with a genetic condition or risk: a mini-review | Q37013072 | ||
| Promoting resilience among parents and caregivers of children with cancer | Q37035780 | ||
| Development and validation of the Psychological Adaptation Scale (PAS): use in six studies of adaptation to a health condition or risk | Q37260731 | ||
| Post-traumatic growth in people living with a serious medical condition and its relations to physical and mental health: a systematic review | Q37436175 | ||
| Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management | Q37640907 | ||
| Annual Research Review: Resilience--clinical implications | Q38047037 | ||
| Duchenne and Becker muscular dystrophies. | Q38230979 | ||
| Development of a new resilience scale: the Connor-Davidson Resilience Scale (CD-RISC). | Q39266372 | ||
| Resilience in relation to personality and intelligence. | Q39268901 | ||
| "My son is still walking": stages of receptivity to discussions of advance care planning among parents of sons with Duchenne muscular dystrophy | Q40281071 | ||
| Relating familial stress to the psychosocial adjustment of adolescents with Duchenne muscular dystrophy | Q40700742 | ||
| The effect of caregiving on women in families with Duchenne/Becker muscular dystrophy | Q44551642 | ||
| Expressive disclosure and benefit finding among breast cancer patients: mechanisms for positive health effects | Q46723271 | ||
| The lived experience of hope among parents of a child with Duchenne muscular dystrophy: perceiving the human being beyond the illness | Q47637011 | ||
| Hidden consequences of success in pediatrics: parental health-related quality of life--results from the Care Project | Q48421330 | ||
| Subjective caregiver burden of parents of adults with Duchenne muscular dystrophy. | Q48525393 | ||
| Parents' perspectives on coping with Duchenne muscular dystrophy. | Q50965998 | ||
| The Zarit Burden Interview: a new short version and screening version. | Q52017155 | ||
| FACTORS RELATING TO CARER BURDEN FOR FAMILIES OF PERSONS WITH MUSCULAR DYSTROPHY | Q58321410 | ||
| Survival in Duchenne muscular dystrophy: improvements in life expectancy since 1967 and the impact of home nocturnal ventilation | Q78616932 | ||
| Depression in parents of children with Duchenne muscular dystrophy | Q80321738 | ||
| Benefit-finding among patients with rheumatoid arthritis: positive effects on interpersonal relationships | Q81737341 | ||
| P433 | issue | 5 | |
| P304 | page(s) | 633-637 | |
| P577 | publication date | 2015-08-26 | |
| P1433 | published in | European Journal of Human Genetics | Q2155433 |
| P1476 | title | Mothers' psychological adaptation to Duchenne/Becker muscular dystrophy | |
| P478 | volume | 24 |
| Q60043962 | A review of quality of life themes in Duchenne muscular dystrophy for patients and carers |
| Q64041158 | Cases from the Undiagnosed Diseases Network: The continued value of counseling skills in a new genomic era |
| Q58656992 | Ethical issues in using the internet to engage participants in family and child research: A scoping review |
| Q40986370 | Factors Associated with Parental Adaptation to Children with an Undiagnosed Medical Condition |
| Q64039409 | Gene therapy as a potential therapeutic option for Duchenne muscular dystrophy: A qualitative preference study of patients and parents |
| Q64072473 | Needs management in families affected by childhood-onset dystrophinopathies |
| Q91893730 | Priorities when deciding on participation in early-phase gene therapy trials for Duchenne muscular dystrophy: a best-worst scaling experiment in caregivers and adult patients |
| Q38643280 | Psychosocial Needs and Facilitators of Mothers Caring for Children with Duchenne/Becker Muscular Dystrophy |
| Q47664781 | Psychosocial Profiles of Parents of Children with Undiagnosed Diseases: Managing Well or Just Managing? |
| Q47418229 | The experience of parents of adult sons with Duchenne muscular dystrophy regarding their prolonged roles as primary caregivers: a serial qualitative study |
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